ZipRecruiter

Log In

2

Remote Rare Disease Jobs (NOW HIRING)

next page

Showing results 1-20

All JobsRare Disease JobsRemote Rare Disease Jobs

Remote Rare Disease information

See salary details

$38.5K

$121.7K

$338.5K

How much do remote rare disease jobs pay per year?

As of Aug 5, 2026, the average yearly pay for remote rare disease in the United States is $121,720.00, according to ZipRecruiter salary data. Most workers in this role earn between $54,000.00 and $250,000.00 per year, depending on experience, location, and employer.

What is a remote rare disease specialist?

A Remote Rare Disease Specialist is a healthcare professional who focuses on diagnosing, managing, and supporting patients with rare diseases, while working remotely using telehealth and digital communication tools. They collaborate with patients, other healthcare providers, and researchers to provide expert guidance, coordinate care, and facilitate access to resources. This role is particularly valuable for patients in underserved or remote areas who may not have access to specialists locally.

What is the difference between Remote Rare Disease vs Remote Clinical Research Coordinator?

AspectRemote Rare DiseaseRemote Clinical Research Coordinator
Required credentialsMedical or scientific background, certifications in rare disease managementClinical research experience, certifications like CCRP or CCRC
Work environmentHealthcare, research institutions, biotech companiesResearch sites, hospitals, pharmaceutical companies
Employer and industry usageSpecialized in rare disease research and patient managementOverseeing clinical trials across various medical fields
Search and comparison intentUnderstanding roles in rare disease researchComparing clinical trial coordination roles

Remote Rare Disease professionals focus on managing and researching rare diseases, often requiring specialized medical knowledge. Remote Clinical Research Coordinators oversee clinical trials across multiple medical areas, including rare diseases. While both roles involve research and coordination, Remote Rare Disease roles are more specialized in rare conditions, whereas Clinical Research Coordinators have broader trial management responsibilities.

How does working remotely in a rare disease role impact collaboration with healthcare professionals and research teams?

Remote roles in the rare disease field often require creative approaches to collaboration, as team members and external partners may be located across different regions or even countries. Most communication is conducted through video calls, secure messaging platforms, and shared databases, which helps maintain strong connections despite the distance. You'll frequently coordinate with clinicians, researchers, and patient advocacy groups to share insights, review data, and develop strategies. Adapting to various time zones and maintaining clear, proactive communication are essential to ensure projects progress smoothly and everyone remains aligned on goals.

What are the key skills and qualifications needed to thrive as a remote rare disease specialist?

To thrive as a Remote Rare Disease Specialist, you need a solid background in medicine, genetics, or related health sciences, often supported by advanced degrees and clinical experience with rare diseases. Familiarity with telemedicine platforms, electronic health records (EHR), and specialized diagnostic tools or genetic testing software is common. Exceptional communication, empathy, and problem-solving skills are crucial for supporting patients and collaborating with multidisciplinary teams remotely. These competencies ensure accurate diagnosis, effective treatment coordination, and compassionate care for patients with complex, rare conditions in a virtual environment.
More about Remote Rare Disease jobs
What cities are hiring for Remote Rare Disease jobs? Cities with the most Remote Rare Disease job openings:
What are the most commonly searched types of Rare Disease jobs? The most popular types of Rare Disease jobs are:
What states have the most Remote Rare Disease jobs? States with the most job openings for Remote Rare Disease jobs include:
What job categories do people searching Remote Rare Disease jobs look for? The top searched job categories for Remote Rare Disease jobs are:
Remote Rare Disease jobs near you
Infographic showing various Remote Rare Disease job openings in the United States as of July 2026, with employment types broken down into 2% As Needed, 81% Full Time, 15% Part Time, and 2% Contract. Highlights an 93% Physical, 1% Hybrid, and 6% Remote job distribution, with an average salary of $121,720 per year, or $58.5 per hour.

Rare Disease Account Manager

Cycle Pharmaceuticals

Nashville, TN • On-site, Remote

$130K - $150K/yr

Other

Medical, Life, Retirement

Re-posted 2 days ago

Job description

Rare Disease Account Manager, Specialty Brands

Cycle Company: Cycle Pharmaceuticals Inc

Location: Remote position but candidates will ideally live in Nashville or Knoxville and close to the airport for travel. 

Position Summary: This is a full-time position within our US Sales department.

Salary: This position is paying between $130,000 - $150,000 base salary depending on experience

The Opportunity 

Cycle Pharmaceuticals is recruiting for a Rare Disease Account Manager to join our sales team, supporting our Specialty portfolio in the Mid-South territory. This position covers Tennessee, Alabama, Kentucky and a small portion of Georgia. This is a unique opportunity to make a meaningful impact in the rare disease space while contributing to the growth of a dynamic, collaborative, and patient-focused organisation.

Our employees are encouraged to have an entrepreneurial mindset, where you can share ideas and bring fresh perspectives and solutions. You'll play an active role in contributing to the strategic planning process and take personal ownership to help us deliver our targets. With a diverse portfolio across multiple therapeutic areas, this position offers variety, challenge, and the opportunity to truly make a difference.

As well as building lasting relationships with clinics, health care and key opinion leaders, you'll develop your internal network and contribute to cross-functional project teams. Having the opportunity to participate in a range of company projects, you will leverage your transferable skills across projects aligned to market access, product launches, patient services and marketing.

Our Company 

At Cycle, we believe that Every Single Patient Matters. This is at the heart of why we work and were looking for people to join our team who share our vision. We know that life-changing treatments need life-improving product support to match, because when you put the two together, great things can happen.

Our core focus areas include rare metabolic, immunological, and neurological genetic conditions, where we improve existing drugs, repurpose them for new uses, and bring generics back to market. Using cutting-edge drug delivery technologies, we enhance the efficiency of treatments, offering patients greater freedom and choice.

Headquartered in Cambridge, UK, with a significant US presence, Cycle has scaled rapidly and was named one of the UK's fastest-growing private companies by The Sunday Times (Sunday Times 100 2024 & Sunday Times 100 Tech 2025). If you want to know more about what we do then, why not check out our website and take a look at some of our patient stories: Patient Stories - Cycle Pharma

What you will be doing: 

  • Create awareness about Cycle Pharma treatment options and the services that can be provided to support both HCPs and patients, through physician, nurse and office-based selling and promotional activity.
  • Engage accounts and HCPs through a variety of mediums including phone, email, video conferencing, and face to face.
  • Educate regarding prescribing process and support services when you help a customer identify a patient.
  • Partner with our in-house HUB and wider patient support team to coordinate patient support. 
  • Coordinate community-based education through thought leaders when requested.
  • Provide input to and collaborate with the Marketing departments and training teams regarding diagnosis, disease education and treatment education, tools and messages.
  • Execute marketing programs and support medical meeting presence to communicate key messages.
  • Collaborate with Medical Affairs on education and other initiatives when appropriate.
  • Adhere to compliance guidelines
  • Develop and execute quarterly territory business plan. 

Skills and experience that will help you to succeed in this position:

  • Pharmaceutical and/or specialty pharmacy sales experience in: Allergy & Immunology, Urology, and Neuromuscular disorders.
  • Experience selling both biopharmaceutical products and services (Rare Disease sales experience is a plus)
  • Proven field-based experience in biopharmaceutical industry and Hospital/Institutional sales experience.
  • Confident at delivering results that meet targeted objectives.
  • Experience with CRM systems, Outlook, Excel
  • Proven ability to work collaboratively across multiple teams, proactively sharing information and insights.
  • Excellent verbal and written communication skills
  • Willingness to travel > 70%
  • Valid driver's license and clean driving record.

What can we offer to you

We have an agile working policy which allows employees the flexibility to manage their appointments, start and finish times around our core working hours and the business need and deliverables. In addition to being part of a great team and doing things that will make a real difference to patients' lives, you will enjoy all the benefits that brings:

  • Competitive salary based on experience
  • A collaborative high performing work environment
  • Performance based bonus
  • Opportunity to join a fast growing and ambitious business
  • 100% employer paid membership for Private Health Insurance
  • Life Insurance
  • 401k plan

Diversity and Inclusion statement:

At Cycle Pharmaceuticals, we are committed to creating an inclusive, respectful, positive and diverse workplace. We do not discriminate on the basis of race, colour, religion, gender, age, disability, or any other protected characteristic. We actively support and embrace diversity, and we are working to build a team that reflects a wide range of backgrounds and perspectives.

We value your unique contributions and encourage you to join us in shaping a more inclusive future. If you require any reasonable adjustments - whether during the application process or in the workplace - we will be happy to support your needs. At Cycle, equality, inclusion, and respect are at the core of everything we do. We fully comply with all applicable employment laws, including those related to non-discrimination, work authorization, and employment eligibility verification.

Apply