ZipRecruiter

Log In

2

Remote Rare Disease Jobs (NOW HIRING)

Biocryst

Rare Disease Specialist

Washington, DC · Remote

Candidates MUST live in proximatey to the Seattle, WA area. #LI-REMOTE ESSENTIAL DUTIES ... Rare Disease and small company experience preferred. * Start-up commercial experience a plus.

Biocryst

Rare Disease Specialist

Chicago, IL · Remote

Candidate MUST live in Japan. #LI-REMOTE ESSENTIAL DUTIES & RESPONSIBILITIES: * Provision ... Rare Disease and small company experience preferred. * Start-up commercial experience a plus.

Biocryst

Rare Disease Specialist

Carolina, RI · Remote

Candidates MUST live in proximatey to the Seattle, WA area. #LI-REMOTE ESSENTIAL DUTIES ... Rare Disease and small company experience preferred. * Start-up commercial experience a plus.

Biocryst

Rare Disease Specialist

Alabama, NY · Remote

Candidate MUST live in Japan. #LI-REMOTE ESSENTIAL DUTIES & RESPONSIBILITIES: * Provision ... Rare Disease and small company experience preferred. * Start-up commercial experience a plus.

Biocryst

Candidate MUST live in Japan. #LI-REMOTE ESSENTIAL DUTIES & RESPONSIBILITIES: * Provision ... Rare Disease and small company experience preferred. * Start-up commercial experience a plus.

Biocryst

Rare Disease Specialist

OR · Remote

Candidates MUST live in proximatey to the Seattle, WA area. #LI-REMOTE ESSENTIAL DUTIES ... Rare Disease and small company experience preferred. * Start-up commercial experience a plus.

UCB

Rare Disease Case Manager

Los Angeles, CA · Remote

$125K - $164K/yr

Make your mark for patients We are looking for a Rare Disease Case Manager for the West Coast ... This remote role requires twenty percent face-to-face interactions and can be based on the ...

Travere

Manager, Market Insights (Rare Disease)

OR · On-site +1

San Diego, USA- Remote Be a part of a global team that is inspired to make a difference in the lives of people living with rare disease. At Travere Therapeutics, we recognize that our exceptional ...

UCB

Rare Disease Case Manager/WA

Seattle, WA · On-site +1

Make your mark for patients We are looking for a Rare Disease Case Manager for the West Coast ... This remote role requires twenty percent face-to-face interactions and can be based on the ...

Amgen

Global Safety Medical Director, Rare Disease

OR · On-site +1

Global Safety Officer, Medical Director, Rare Disease What you will do Let's do this. Let's change ... Flexible work models, including remote and hybrid work arrangements, where possible Apply now for a ...

next page

Showing results 1-20

All JobsRare Disease JobsRemote Rare Disease Jobs

Remote Rare Disease information

See salary details

$38.5K

$121.7K

$338.5K

How much do remote rare disease jobs pay per year?

As of Jun 16, 2026, the average yearly pay for remote rare disease in the United States is $121,720.00, according to ZipRecruiter salary data. Most workers in this role earn between $54,000.00 and $250,000.00 per year, depending on experience, location, and employer.

What is a Remote Rare Disease Specialist?

A Remote Rare Disease Specialist is a healthcare professional who focuses on diagnosing, managing, and supporting patients with rare diseases, while working remotely using telehealth and digital communication tools. They collaborate with patients, other healthcare providers, and researchers to provide expert guidance, coordinate care, and facilitate access to resources. This role is particularly valuable for patients in underserved or remote areas who may not have access to specialists locally.

What is the difference between Remote Rare Disease vs Remote Clinical Research Coordinator?

AspectRemote Rare DiseaseRemote Clinical Research Coordinator
Required credentialsMedical or scientific background, certifications in rare disease managementClinical research experience, certifications like CCRP or CCRC
Work environmentHealthcare, research institutions, biotech companiesResearch sites, hospitals, pharmaceutical companies
Employer and industry usageSpecialized in rare disease research and patient managementOverseeing clinical trials across various medical fields
Search and comparison intentUnderstanding roles in rare disease researchComparing clinical trial coordination roles

Remote Rare Disease professionals focus on managing and researching rare diseases, often requiring specialized medical knowledge. Remote Clinical Research Coordinators oversee clinical trials across multiple medical areas, including rare diseases. While both roles involve research and coordination, Remote Rare Disease roles are more specialized in rare conditions, whereas Clinical Research Coordinators have broader trial management responsibilities.

How does working remotely in a rare disease role impact collaboration with healthcare professionals and research teams?

Remote roles in the rare disease field often require creative approaches to collaboration, as team members and external partners may be located across different regions or even countries. Most communication is conducted through video calls, secure messaging platforms, and shared databases, which helps maintain strong connections despite the distance. You'll frequently coordinate with clinicians, researchers, and patient advocacy groups to share insights, review data, and develop strategies. Adapting to various time zones and maintaining clear, proactive communication are essential to ensure projects progress smoothly and everyone remains aligned on goals.

What are the key skills and qualifications needed to thrive as a Remote Rare Disease Specialist, and why are they important?

To thrive as a Remote Rare Disease Specialist, you need a solid background in medicine, genetics, or related health sciences, often supported by advanced degrees and clinical experience with rare diseases. Familiarity with telemedicine platforms, electronic health records (EHR), and specialized diagnostic tools or genetic testing software is common. Exceptional communication, empathy, and problem-solving skills are crucial for supporting patients and collaborating with multidisciplinary teams remotely. These competencies ensure accurate diagnosis, effective treatment coordination, and compassionate care for patients with complex, rare conditions in a virtual environment.
More about Remote Rare Disease jobs
What cities are hiring for Remote Rare Disease jobs? Cities with the most Remote Rare Disease job openings:
What are the most commonly searched types of Rare Disease jobs? The most popular types of Rare Disease jobs are:
What states have the most Remote Rare Disease jobs? States with the most job openings for Remote Rare Disease jobs include:
What job categories do people searching Remote Rare Disease jobs look for? The top searched job categories for Remote Rare Disease jobs are:
Remote Rare Disease jobs near you
Infographic showing various Remote Rare Disease job openings in the United States as of June 2026, with employment types broken down into 100% Full Time. Highlights an 100% Remote job distribution, with an average salary of $121,720 per year, or $58.5 per hour.

Rare Disease Specialist

Biocryst

Washington, DC • Remote

Full-time

Posted 19 days ago

Job description

COMPANY:

At BioCryst, we share a deep commitment to improving the lives of people living with hereditary angioedema (HAE) and other rare diseases. We leverage our expertise in structure-guided drug design to develop first-in-class or best-in-class oral small-molecule and injectable protein therapeutics, led by the efforts of our team of expert scientists in our Discovery Center of Excellence in Birmingham, Alabama. Our global headquarters is in Durham, North Carolina, we have a regional office in Boston, Massachusetts, and our employees span the globe across sites in multiple countries. We are proud of our culture of engagement and accountability that rewards people for innovative thinking and achievement of key objectives. For more information, please visit our website at www.biocryst.comor follow uson LinkedInand Instagram.


JOB SUMMARY:

The Rare Disease Specialist will compliantly market BioCryst products to our customers. Territory covers WA, AK and MT. Candidates MUST live in proximatey to the Seattle, WA area. #LI-REMOTE

ESSENTIAL DUTIES & RESPONSIBILITIES:

  • Have "game changing" conversations with our customers, compliantly utilizing effective selling techniques and marketing strategies to create and expand demand for any/all promoted brand(s) for which are responsible.
  • Develop and expand a thorough understanding of key customers.
  • Create, maintain and update an active customer database.
  • Develop strategies to effectively utilize marketing materials and programs.
  • Have a mastery of key account management.
  • Develop exceptional business plans with resource allocations that link to strong business results.
  • Be extremely customer-focused and able to build and foster strong positive relationships with key decision makers and opinion leaders.
  • Arrange and coordinate effective promotional programs within all promotional and regulatory guidelines.
  • Conduct essential field activities including, but not limited to, lunch and learns, customer in-services, and other compliant customer interactive activities.
  • Complete expense reports and other required administrative reports in an accurate and timely manner.
  • Report all call information in a timely fashion.
  • Attend training programs, conventions, and symposia, as requested.
  • Focus on the end results of the sales process, demonstrating personal accountability, a sense of urgency and commitment to achieve business objectives.
  • Exemplify strong collaboration and teamwork with internal and external stakeholders.
  • Proactively use resources and share best practices that lead to achieving or exceeding business goals.
  • Adhere to all company compliance guidelines, policy, and procedures.
  • Other duties as assigned.

EXPERIENCE & QUALIFICATIONS:

  • Bachelor's degree or equivalent required.
  • Minimum of 5 years of pharmaceutical and/or biotech selling experience.
  • Rare Disease and small company experience preferred.
  • Start-up commercial experience a plus.
  • Existing relationships with key accounts within assigned geography are helpful.
  • Strong track record of successfully exceeding sales goals to include national awards such as President's Club.
  • Demonstrated success of selling in a territory where the candidate was the sole commercial salesperson.
  • Proven ability to formulate and implement effective rare disease sales skills and results.
  • Knowledge of relevant disease states and current treatments.
  • Excellent written and oral communication skills.
  • Strong business and analytical ability.
  • Proven ability to create and innovate, build and expand business and work both independently as well as in teams.
  • Ability to quickly assimilate complex information.
  • Excellent negotiation skills.
  • Knowledge of reimbursement.
  • Knowledge of territory.
  • Valid driver's license and clean driving record.
  • Ability to travel as necessary or required, which may include overnight and/or weekend travel.

The statements in this position description are intended to describe the general nature and level of work being performed by people assigned to this classification. They are not intended to be construed as an exhaustive list of responsibilities, duties, and skills required of personnel so classified. The manager may assign additional responsibilities and assignments from time to time.

BioCryst is an equal opportunity employer and is committed to providing equal employment opportunities without regard to age, race, religion, sex, sexual orientation, gender identity, national origin, Veterans status, disability and/or other protected class characteristics. Additionally, BioCryst is committed to achieving its business objectives in compliance with all federal, state and local law.

Equal Opportunity Employer/Protected Veterans/Individuals with Disabilities

This employer is required to notify all applicants of their rights pursuant to federal employment laws. For further information, please review the Know Your Rights notice from the Department of Labor.

Apply