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Remote Rare Disease Jobs (NOW HIRING)

McKesson

Clinical Science Liaison

Cary, NC · Remote

$60K - $81K/yr

Act as a subject matter expert in oncology, rare disease, and cell and gene therapy. * Ensure ... Remote, field-based role. * Ability to travel 75%, including evenings and weekends as needed.

McKesson

Clinical Science Liaison

OR · Remote

$65K - $87K/yr

Act as a subject matter expert in oncology, rare disease, and cell and gene therapy. * Ensure ... Remote, field-based role. * Ability to travel 75%, including evenings and weekends as needed.

McKesson

Clinical Science Liaison

Cary, NC · Remote

$60K - $81K/yr

Act as a subject matter expert in oncology, rare disease, and cell and gene therapy. * Ensure ... Remote, field-based role. * Ability to travel 75%, including evenings and weekends as needed.

McKesson Corporation

Clinical Science Liaison

Cary, NC · On-site +1

$60K - $81K/yr

Act as a subject matter expert in oncology, rare disease, and cell and gene therapy. * Ensure ... Remote, field-based role. * Ability to travel ≥75%, including evenings and weekends as needed.

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Remote Rare Disease information

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$38.5K

$121.7K

$338.5K

How much do remote rare disease jobs pay per year?

As of Jun 16, 2026, the average yearly pay for remote rare disease in the United States is $121,720.00, according to ZipRecruiter salary data. Most workers in this role earn between $54,000.00 and $250,000.00 per year, depending on experience, location, and employer.

What is a Remote Rare Disease Specialist?

A Remote Rare Disease Specialist is a healthcare professional who focuses on diagnosing, managing, and supporting patients with rare diseases, while working remotely using telehealth and digital communication tools. They collaborate with patients, other healthcare providers, and researchers to provide expert guidance, coordinate care, and facilitate access to resources. This role is particularly valuable for patients in underserved or remote areas who may not have access to specialists locally.

What is the difference between Remote Rare Disease vs Remote Clinical Research Coordinator?

AspectRemote Rare DiseaseRemote Clinical Research Coordinator
Required credentialsMedical or scientific background, certifications in rare disease managementClinical research experience, certifications like CCRP or CCRC
Work environmentHealthcare, research institutions, biotech companiesResearch sites, hospitals, pharmaceutical companies
Employer and industry usageSpecialized in rare disease research and patient managementOverseeing clinical trials across various medical fields
Search and comparison intentUnderstanding roles in rare disease researchComparing clinical trial coordination roles

Remote Rare Disease professionals focus on managing and researching rare diseases, often requiring specialized medical knowledge. Remote Clinical Research Coordinators oversee clinical trials across multiple medical areas, including rare diseases. While both roles involve research and coordination, Remote Rare Disease roles are more specialized in rare conditions, whereas Clinical Research Coordinators have broader trial management responsibilities.

How does working remotely in a rare disease role impact collaboration with healthcare professionals and research teams?

Remote roles in the rare disease field often require creative approaches to collaboration, as team members and external partners may be located across different regions or even countries. Most communication is conducted through video calls, secure messaging platforms, and shared databases, which helps maintain strong connections despite the distance. You'll frequently coordinate with clinicians, researchers, and patient advocacy groups to share insights, review data, and develop strategies. Adapting to various time zones and maintaining clear, proactive communication are essential to ensure projects progress smoothly and everyone remains aligned on goals.

What are the key skills and qualifications needed to thrive as a Remote Rare Disease Specialist, and why are they important?

To thrive as a Remote Rare Disease Specialist, you need a solid background in medicine, genetics, or related health sciences, often supported by advanced degrees and clinical experience with rare diseases. Familiarity with telemedicine platforms, electronic health records (EHR), and specialized diagnostic tools or genetic testing software is common. Exceptional communication, empathy, and problem-solving skills are crucial for supporting patients and collaborating with multidisciplinary teams remotely. These competencies ensure accurate diagnosis, effective treatment coordination, and compassionate care for patients with complex, rare conditions in a virtual environment.
More about Remote Rare Disease jobs
What cities are hiring for Remote Rare Disease jobs? Cities with the most Remote Rare Disease job openings:
What are the most commonly searched types of Rare Disease jobs? The most popular types of Rare Disease jobs are:
What states have the most Remote Rare Disease jobs? States with the most job openings for Remote Rare Disease jobs include:
What job categories do people searching Remote Rare Disease jobs look for? The top searched job categories for Remote Rare Disease jobs are:
Remote Rare Disease jobs near you
Infographic showing various Remote Rare Disease job openings in the United States as of June 2026, with employment types broken down into 100% Full Time. Highlights an 100% Remote job distribution, with an average salary of $121,720 per year, or $58.5 per hour.
Business Account Executive-Rare Disease (Dallas)

Business Account Executive-Rare Disease (Dallas)

Alnylam Pharmaceuticals

Remote

$144K - $195K/yr

Full-time

Medical, Dental, Vision, Life, Retirement, PTO

Posted 16 days ago

Job description

Overview
We are looking for an experienced and talented Business Account Executive (BAE) to commercially represent GIVLAARI® and OXLUMO® in the United States and have a significant impact on the lives of AHP patients. AHP's represent a sub-group of Porphyrias, characterized by the occurrence of neuro-visceral attacks with or without cutaneous manifestations. AHP's include four disorders: acute intermittent porphyria (the most common), variegate porphyria, hereditary coproporphyria, and a genetic deficit of delta-aminolaevulinic acid dehydratase. PH1 is a rare, life-threatening disease that can cause serious damage to kidneys and progressively to other organs. PH1 is a little-known condition and patients often spend years undiagnosed and misdiagnosed.
The BAE will be principally responsible for driving physician and patient identification, disease awareness, overall market development, and brand awareness within their ascribed territory. The BAE will be responsible for achieving territory targets and other business objectives through account and customer strategies, while also partnering & collaborating very closely with internal and external stakeholders to effectively manage all aspects of the regional business. The achievement of targets will be based in Alnylam's values: our commitment to people, sense of urgency, passion for excellence, innovation & discovery, and open culture as well as our unwavering commitment to integrity.
The BAE will report to the Regional Business Director (RBD) for their respective region.
Key Responsibilities
  • Drive patient identification through appropriate HCP driven strategies including market development, increase brand awareness through building and executing a territory strategy/account plan; continuously assess opportunities within markets and accounts to launch successfully.
  • Effectively prioritize and manage time, activities, and resources in order to optimize access to academic and community HCPs.
  • Build and maintain relationships with HCPs and office staff by maximizing their time through planning, leveraging insights, and conducting post-call analysis refining tactics based on opportunities.
  • Proactively build effective working relationships with internal/external stakeholders; drive agreement/decisions from multiple stakeholders; demonstrated high level of emotional intelligence adapting communication based on different stakeholders.
  • Collaborate with stakeholders across all commercial departments including; patient services, field reimbursement, and others to ensure access at site of care and that logistics are in place to administer medications.
  • Collaborate with key accounts and physicians to build individual account plans to drive patient identification through market development and physician education; achieve sales goals, and maintain relationships in order to maximize sales results.
  • Execute speaker programs, local sponsorships, displays and exhibits, both in and out of office across multiple account types: academic institutions, physician offices, infusion centers, and alternate site locations.
  • Routinely report territory-level market dynamics and trends, including prescriber opinion and competitive activity to RBD as required.

Qualifications
  • Bachelor's degree required
  • 5+ years of demonstrated success in biotech, specialty pharmaceuticals, or medical devices.
  • Experience, success and relationships in Rare Disease, Gastroenterology, Hepatology, Neurology, Hematology/Oncology, pediatric and adult Nephrology and/or Urology are preferred but not required.
  • Buy & Bill understanding and experience working with HUB patient services preferred but not required.
  • Thorough understanding of site of care identification, development and education.
  • Strong examples of applied entrepreneurial mindset, business analytics and data analysis required.
  • Experience supporting biologic therapy administered by designated HCPs preferred.
  • Experience driving, leading and delivering upon territory-level cross functional business planning.
  • Must be familiar with relevant legal and regulatory environment in biotech/pharmaceutical industry.
  • Strong communication and listening skills.
  • Effective at managing complex individualized cases in a compliant manner.
  • Overnight travel required including travel to Boston, congresses and large geographical territories
  • Candidates must have a valid driver's license.
  • Must live in the assigned territory.

#LI-KB2 #LI-Remote
U.S. Pay Range
$144,500.00 - $195,500.00
The pay range reflects the full-time base salary range we expect to pay for this role at the time of posting. Base pay will be determined based on a number of factors including, but not limited to, relevant experience, skills, and education. This role is eligible for an annual short-term incentive award (e.g., bonus or sales incentive) and an annual long-term incentive award (e.g., equity).
Alnylam's robust Total Rewards package is designed to support your overall health and well-being. We offer comprehensive benefits including medical, dental, and vision coverage, life and disability insurance, a lifestyle reimbursement program, flexible spending and health savings accounts and a 401(k)with a generous company match. Eligible employees enjoy paid time off, wellness days, holidays, and two company-wide recharge breaks. We also offer generous family resources and leave. Our commitment to your well-being reflects our belief that caring for our people fuels the impact we create together.
Learn more about these and additional benefits offered by Alnylam by visiting the Benefits section of the Careers website: https://www.alnylam.com/careers
About Alnylam
We are the leader in RNAi therapeutics - a revolutionary approach with the potential to transform the lives of people with rare and common diseases. Built on Nobel Prize-winning science, Alnylam has delivered the breakthroughs that made RNAi therapeutics possible and are just at the beginning of what's possible. Our deep pipeline, late-stage programs, and bold vision reflect our core values: fierce innovation, passion for excellence, purposeful urgency, open culture and commitment to people. We're proud to be a globally recognized top employer, where an authentic, inclusive culture and breakthrough thinking fuel one another.
At Alnylam, we commit to an inclusive recruitment process and equal employment opportunity. Qualified applicants will receive consideration for employment without regard to their sex, gender or gender identity, sexual orientation, race, color, ethnicity, national origin, ancestry, citizenship, religion, creed, physical or mental disability, pregnancy status or related conditions, genetic information, veteran or military status, marital or familial status, political affiliation, age, or any other factor protected by federal, state, or local law. Alnylam is an E-Verify Employer.

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