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$38.5K

$121.7K

$338.5K

How much do remote rare disease jobs pay per year?

As of Aug 7, 2026, the average yearly pay for remote rare disease in the United States is $121,720.00, according to ZipRecruiter salary data. Most workers in this role earn between $54,000.00 and $250,000.00 per year, depending on experience, location, and employer.

What is a remote rare disease specialist?

A Remote Rare Disease Specialist is a healthcare professional who focuses on diagnosing, managing, and supporting patients with rare diseases, while working remotely using telehealth and digital communication tools. They collaborate with patients, other healthcare providers, and researchers to provide expert guidance, coordinate care, and facilitate access to resources. This role is particularly valuable for patients in underserved or remote areas who may not have access to specialists locally.

What is the difference between Remote Rare Disease vs Remote Clinical Research Coordinator?

AspectRemote Rare DiseaseRemote Clinical Research Coordinator
Required credentialsMedical or scientific background, certifications in rare disease managementClinical research experience, certifications like CCRP or CCRC
Work environmentHealthcare, research institutions, biotech companiesResearch sites, hospitals, pharmaceutical companies
Employer and industry usageSpecialized in rare disease research and patient managementOverseeing clinical trials across various medical fields
Search and comparison intentUnderstanding roles in rare disease researchComparing clinical trial coordination roles

Remote Rare Disease professionals focus on managing and researching rare diseases, often requiring specialized medical knowledge. Remote Clinical Research Coordinators oversee clinical trials across multiple medical areas, including rare diseases. While both roles involve research and coordination, Remote Rare Disease roles are more specialized in rare conditions, whereas Clinical Research Coordinators have broader trial management responsibilities.

How does working remotely in a rare disease role impact collaboration with healthcare professionals and research teams?

Remote roles in the rare disease field often require creative approaches to collaboration, as team members and external partners may be located across different regions or even countries. Most communication is conducted through video calls, secure messaging platforms, and shared databases, which helps maintain strong connections despite the distance. You'll frequently coordinate with clinicians, researchers, and patient advocacy groups to share insights, review data, and develop strategies. Adapting to various time zones and maintaining clear, proactive communication are essential to ensure projects progress smoothly and everyone remains aligned on goals.

What are the key skills and qualifications needed to thrive as a remote rare disease specialist?

To thrive as a Remote Rare Disease Specialist, you need a solid background in medicine, genetics, or related health sciences, often supported by advanced degrees and clinical experience with rare diseases. Familiarity with telemedicine platforms, electronic health records (EHR), and specialized diagnostic tools or genetic testing software is common. Exceptional communication, empathy, and problem-solving skills are crucial for supporting patients and collaborating with multidisciplinary teams remotely. These competencies ensure accurate diagnosis, effective treatment coordination, and compassionate care for patients with complex, rare conditions in a virtual environment.
More about Remote Rare Disease jobs
What cities are hiring for Remote Rare Disease jobs? Cities with the most Remote Rare Disease job openings:
What are the most commonly searched types of Rare Disease jobs? The most popular types of Rare Disease jobs are:
What states have the most Remote Rare Disease jobs? States with the most job openings for Remote Rare Disease jobs include:
What job categories do people searching Remote Rare Disease jobs look for? The top searched job categories for Remote Rare Disease jobs are:
Remote Rare Disease jobs near you
Infographic showing various Remote Rare Disease job openings in the United States as of August 2026, with employment types broken down into 3% As Needed, 77% Full Time, 17% Part Time, and 3% Contract. Highlights an 92% Physical, 1% Hybrid, and 7% Remote job distribution, with an average salary of $121,720 per year, or $58.5 per hour.

Regional Brand Manager, Rare Disease - Southeast / Mid-Atlantic

Alkermes

Miami, FL • Remote

$200K - $220K/yr

Full-time

Posted 8 days ago

Job description

The Regional Brand Manager (RBM) is an integral member of the Sleep marketing team, supporting the continued growth of the brand.  The RBM role is field based, with high expectations for customer engagement, strategic execution, leadership, collaboration, and insights gathering.  The RBM role will partner across the Commercial Team to execute the brand strategy, positioning Alkermes as THE leader in rare sleep medicine.

Minimum Education & Experience Requirements:

  • Bachelor's degree

  • 10+ years of professional pharma/medical device experience

  • Driver's license must be in good standing

  • Must be able to demonstrate or secure appropriate credentialing, as may be required by healthcare providers for physical access to their facilities

 Preferred Skill and Knowledge Qualifications:

  • 10+ years of pharma experience, including rare disease experience

  • 3+ years of experience in product marketing and/or sales management

  • Ability to analyze data sets and think strategically to develop regional plans

  • Strong interpersonal and EQ skills for interactions with KOLs, speakers, and/or advisors in regional engagements and in group settings 

  • Effective peer leadership history and desire to collaborate across multiple functions (sales, sales training, compliance, medical affairs, market insights, market access)

  • Ability to lead without authority across multiple functions within the commercial organization

  • Strong communication skills, both oral and written

  • Deep knowledge regarding the legal and regulatory environment regarding pharmaceutical promotion, industry guidelines, and experience partnering with compliance

  • Track record of high performance 

 Travel & Other Requirements:

  • This marketing position is field-based with variable working times depending upon brand and customer availability/needs requiring 60%-70% travel (including nights and weekends) on a consistent basis 

  • An appropriate candidate must reside within the position's territory geography

The annual base salary for this position ranges from $200k to $220k. In addition, this position is eligible for an annual performance pay bonus.  Exact compensation may vary based on skills, training, knowledge, and experience. Alkermes offers a competitive benefits package.  Additional details can be found on our careers website: www.alkermes.com/careers#working-here

#LI-TT1 #LI-remote

KOL Engagement: 

  • Build strong KOL relationships and trust to inform marketing strategy and initiatives

  • Develop regional KOL strategies by identifying, profiling, and engaging established and rising thought leaders in the rare sleep therapeutic area

  • Lead regional and national congress execution by organizing executive leadership engagement at key conferences, determining resource allocation, and deliberately engaging KOL/faculty

Insights Gathering:

  • Bring insights from thought leaders and sales teams to the brand team to inform strategy, resource utilization, messaging, and tactical execution

  • Identify marketplace trends, including barriers, to guide brand strategy and future opportunities

  • Help implement advisory boards, including planning, participant identification, and moderation

  • Collect KOL beliefs, develop HCP profiles, and gain competitive insights at regional and national congresses

Speaker Bureau Leadership: 

  • Help identify, recruit, and manage speakers for the LUMRYZ speaker's bureau

  • Provide guidance to speakers to ensure accurate, effective and compliant product and/or disease-state presentations 

  • Coach speakers as needed regarding content and communication skills through direct observation and feedback

Product Brand Champion: 

  • Lead cross-functional collaboration and drive brand across a matrixed commercial team to ensure strategic alignment and execution

  • Regularly engage with territory business managers to ensure strategic alignment and gain insights from resource utilization/messaging in field by joining conference calls, attending sales meetings, and, occasionally, conducting field rides

Apply