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Entry Level Rare Disease Jobs (NOW HIRING)

Neurology Rare Disease Center

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Clinical Research Coordinator (CRC)

Flower Mound, TX · On-site

$50K - $70K/yr

This is not an entry-level role and requires a high level of accountability, ownership, and the ... Experience in neurology, neuromuscular, or rare disease trials * Experience in industry-sponsored ...

New

GeneDx

Lab Technician

Gaithersburg, MD

$20.50 - $27.25/hr

... rare disease data sets. For more information, please visit www.genedx.com. Summary The Lab Technician for OneLab, performs an entry level role in the testing of clinical DNA specimens for the purpose ...

Envision Pharma Group

Senior Medical Writer

$88K - $115K/yr

... Rare Disease, Oncology, and Ophthalmology), client and competitor products, and industry ... Provide mentorship, guidance and advice for entry-level writers, as required. * Contribute to ...

GeneDx

Billing Support Specialist I

Gaithersburg, MD

$20.75 - $28/hr

... rare disease data sets. For more information, please visitwww.genedx.com. Summary This is an on ... an entry-level position responsible for providing outstanding customer service to patients and ...

GeneDx

Lab Technician

Gaithersburg, MD · On-site

$23 - $24/hr

... rare disease data sets. For more information, please visit www.genedx.com. Summary The Lab Technician for OneLab, performs an entry level role in the testing of clinical DNA specimens for the purpose ...

University of Utah

Post Doc Res Assoc

Campus, IL

$65K - $73K/yr

... P1 - Entry Level Pro FLSA Code Administrative Patient Sensitive Job Code? No Standard Hours per ... Reverse mitochondrial dysfunction in rare mitochondrial diseases as well as common metabolic ...

University of Utah

Post Doc Res Assoc

Campus, IL · On-site

$65K - $73K/yr

... P1 - Entry Level Pro FLSA Code Administrative Patient Sensitive Job Code? No Standard Hours per ... Reverse mitochondrial dysfunction in rare mitochondrial diseases as well as common metabolic ...

University of Utah

Post Doc Res Assoc

Campus, IL · On-site

$65K - $73K/yr

... P1 - Entry Level Pro FLSA Code Administrative Patient Sensitive Job Code? No Standard Hours per ... Reverse mitochondrial dysfunction in rare mitochondrial diseases as well as common metabolic ...

GeneDx

Billing Support Specialist I

Gaithersburg, MD · On-site

$23.50 - $25.50/hr

... rare disease data sets. For more information, please visit www.genedx.com. Summary This is an on ... an entry-level position responsible for providing outstanding customer service to patients and ...

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Entry Level Rare Disease information

What is an entry level rare disease?

An entry level rare disease job typically refers to positions within the healthcare, pharmaceutical, or research industries that focus on rare diseases, which are conditions affecting a small percentage of the population. These roles may include research assistants, clinical trial coordinators, or patient support specialists. Entry level employees often help with data collection, patient outreach, or supporting senior staff in research and development. The goal is to gain experience in the rare disease field while contributing to the understanding and treatment of these conditions. Such positions are a stepping stone for careers in clinical research, drug development, or patient advocacy.

What are the key skills and qualifications needed to thrive as an entry level rare disease specialist?

To thrive as an Entry Level Rare Disease Specialist, you need a background in life sciences or healthcare, strong research skills, and a keen understanding of rare disease pathology. Familiarity with medical databases, clinical trial management systems, and regulatory documentation is typically required. Excellent communication, attention to detail, and problem-solving abilities help you effectively support patients and collaborate with cross-functional teams. These skills ensure accurate information dissemination, regulatory compliance, and meaningful contributions to advancing rare disease research and patient care.

What is the difference between Entry Level Rare Disease vs Entry Level Clinical Research Coordinator?

AspectEntry Level Rare DiseaseEntry Level Clinical Research Coordinator
Required CredentialsBachelor's degree, basic knowledge of rare diseasesBachelor's degree, knowledge of clinical trial processes
Work EnvironmentHealthcare settings, research labs, biotech companiesHospitals, research institutions, clinical trial sites
Employer & Industry UsageBiotech firms, rare disease research organizationsPharmaceutical companies, clinical research organizations
Search & Comparison IntentUnderstanding entry roles in rare disease researchEntry roles in clinical trial coordination

While both roles are entry-level and involve healthcare research, Entry Level Rare Disease focuses on understanding and supporting research specific to rare diseases, often requiring knowledge of genetics and specialized conditions. Entry Level Clinical Research Coordinator involves managing clinical trials, coordinating patient visits, and ensuring compliance. Both roles are vital in the clinical research industry but differ in focus and daily responsibilities.

What are common challenges faced in an entry level rare disease role, and how can I prepare for them?

In an Entry Level Rare Disease position, one of the main challenges is navigating the complexity and rarity of the conditions you’ll be working with, which may involve limited data and treatment options. You’ll often need to communicate with healthcare professionals and patients who have a high need for accurate, up-to-date information. To prepare, familiarize yourself with orphan drug regulations, develop strong research and communication skills, and stay adaptable as you may frequently encounter unique cases. Collaboration with cross-functional teams such as medical affairs, regulatory, and patient advocacy groups is also common, so being a team player is essential.
More about Entry Level Rare Disease jobs
What cities are hiring for Entry Level Rare Disease jobs? Cities with the most Entry Level Rare Disease job openings:
What are the most commonly searched types of Rare Disease jobs? The most popular types of Rare Disease jobs are:
What states have the most Entry Level Rare Disease jobs? States with the most job openings for Entry Level Rare Disease jobs include:
What job categories do people searching Entry Level Rare Disease jobs look for? The top searched job categories for Entry Level Rare Disease jobs are:
Entry Level Rare Disease jobs near you
Infographic showing various Entry Level Rare Disease job openings in the United States as of July 2026, with employment types broken down into 50% Full Time, and 50% Part Time. Highlights an 100% In-person job distribution.

Clinical Research Coordinator (CRC)

Neurology Rare Disease Center

Flower Mound, TX • On-site

$50K - $70K/yr

Full-time

Medical, Dental, Vision, Life, Retirement, PTO

Posted yesterday

New

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Job description

Position Summary

We are seeking a highly motivated and detail-oriented Clinical Research Coordinator (CRC) to oversee and manage clinical trials from start-up through close-out. This role requires strong organizational skills, regulatory knowledge, and the ability to work closely with patients, investigators, sponsors, and coordinate activities across both on-site and remote PRN staff. Candidates must be willing to travel, including attendance at Investigator Meetings (IMs), as required. This is not an entry-level role and requires a high level of accountability, ownership, and the ability to operate independently with minimal oversight.

Key Responsibilities

  • Independently coordinate multiple clinical trials from startup to close-out
  • Lead patient recruitment, screening, consenting, and retention strategies
  • Conduct study visits, assessments, and protocol-specific procedures
  • Ensure strict adherence to GCP, FDA regulations, and protocol requirements
  • Maintain high-quality source documentation and EDC data entry (real-time, audit-ready)
  • Manage investigational product accountability and study logistics
  • Serve as the primary point of contact for sponsors, CROs, and monitors
  • Prepare for and confidently support monitoring visits, audits, and FDA inspections
  • Identify inefficiencies and proactively improve workflows

Performance Expectations

  • Maintain audit-ready documentation at all times (ALCOA+ compliant)
  • Ensure timely and accurate EDC data entry (real-time or within defined timelines)
  • Demonstrate ownership of assigned studies with minimal oversight
  • Maintain readiness for monitoring visits, audits, and FDA inspections at all times
  • Proactively identify, document, and escalate issues, risks, and protocol deviations

Work Environment

  • Fast-paced, high-accountability clinical research setting
  • Requires ability to manage competing priorities and adapt to changing study demands
  • High level of autonomy with expectation of independent problem-solving

Qualifications

  • Bachelor’s degree in life sciences, healthcare, or related field (preferred)
  • 2+ years of clinical research experience (CRC experience preferred)
  • Strong knowledge of GCP, FDA, and IRB processes
  • Experience with EDC systems and clinical trial documentation
  • Excellent organizational, communication, and multitasking skills
  • Ability to manage multiple studies in a fast-paced environment

Highly Preferred (but not required)

  • Experience in neurology, neuromuscular, or rare disease trials
  • Experience in industry-sponsored trials
  • Phlebotomy and/or clinical skills
  • Certification (CCRC, CCRP, or equivalent)
  • Experience in reviewing patient medical records for pre-screening
  • Experience with CRIO preferred but not required

Compensation & Benefits

  • Competitive salary (based on experience; typical CRC range (~$50K–$70K/year) 
  • Health, dental, and vision insurance
  • Paid time off
  • Opportunities for growth and leadership within a rapidly expanding research center

Company Description

Neurology Rare Disease Center is a growing neurology and clinical research center dedicated to advancing care for patients with rare neuromuscular diseases. We are committed to high-quality, patient-centered research and innovation. We are building a team of people who care deeply about patients and take pride in doing things the right way.