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Rare Disease Internship information

What is a rare disease internship?

A Rare Disease Internship is a specialized training program designed for students or recent graduates interested in gaining experience in the field of rare diseases. These internships often involve working with research teams, healthcare providers, or advocacy organizations to support projects related to the diagnosis, treatment, and awareness of rare diseases. Interns may assist with clinical research, patient advocacy, data analysis, or community outreach. The goal is to provide hands-on experience and a deeper understanding of the unique challenges faced by individuals with rare conditions. Such internships are valuable for those considering careers in medicine, research, public health, or policy related to rare diseases.

What types of projects or responsibilities can I expect during a rare disease internship?

As a Rare Disease Intern, you will often work on a variety of projects such as literature reviews, data analysis, and assisting with clinical trial operations or patient outreach initiatives. You may also collaborate with cross-functional teams, including research scientists, medical affairs, and regulatory professionals, to support ongoing research or awareness campaigns. Expect to gain hands-on experience with rare disease data, learn about regulatory challenges, and contribute to projects that can have a real-world impact on patient care. This role offers excellent exposure to the unique complexities of rare disease research and provides opportunities to build valuable professional connections.

What are the key skills and qualifications needed to thrive as a rare disease intern, and why are they important?

To thrive as a Rare Disease Intern, you typically need a background in life sciences or healthcare, strong research abilities, and an understanding of medical terminology. Familiarity with data analysis tools, literature review databases, and possibly regulatory documentation systems is often required. Attention to detail, initiative, and effective communication are standout soft skills for collaborating with cross-functional teams and stakeholders. These skills and qualities are crucial for contributing meaningful insights to rare disease research and supporting innovative projects in a niche, highly specialized field.

What is the difference between Rare Disease Internship vs Rare Disease Research Assistant?

AspectRare Disease InternshipRare Disease Research Assistant
Required CredentialsTypically students or early-career individuals, some may require related courseworkUsually requires a bachelor's degree in a relevant field, some roles prefer or require a master's
Work EnvironmentInternships often in academic, clinical, or research settings, supervised by professionalsResearch labs, hospitals, or academic institutions, with more independent responsibilities
Employer & Industry UsageCommon in universities, research institutes, biotech companiesFound in research institutions, hospitals, pharmaceutical companies

While both roles focus on rare diseases, a Rare Disease Internship is typically an entry-level, temporary position for students or early-career individuals gaining experience. A Rare Disease Research Assistant usually holds a more advanced, ongoing role with greater responsibilities in research projects. Both positions are vital for advancing rare disease research but differ mainly in experience level and scope.

More about Rare Disease Internship jobs
What cities are hiring for Rare Disease Internship jobs? Cities with the most Rare Disease Internship job openings:
What are the most commonly searched types of Rare Disease jobs? The most popular types of Rare Disease jobs are:
What states have the most Rare Disease Internship jobs? States with the most job openings for Rare Disease Internship jobs include:
Infographic showing various Rare Disease Internship job openings in the United States as of August 2026, with employment types broken down into 3% As Needed, 78% Full Time, 17% Part Time, and 2% Contract. Highlights an 93% Physical, 1% Hybrid, and 6% Remote job distribution.

Clinical Patient Engagement Manager (33080)

Pantherx Specialty LLC

Robinson, PA

$58K - $80K/yr

Full-time

Medical, Dental, Vision, Life, Retirement, PTO

Posted 13 days ago


Job description

7,000 Diseases - 500 Treatments - 1 Rare Pharmacy

PANTHERx is the nation’s largest rare disease pharmacy, and we put the patient experience at the top of everything that we do.

If you are looking for a career in the healthcare field that embraces authentic dedication to patient care, you don’t need to look beyond PANTHERx. In every line of service, in every position and area of expertise, PANTHERx associates are driven to provide the highest quality outcomes for our patients.

We are seeking team members who:

Are inspired and compassionate problem solvers;

Produce high quality work;

Thrive in the excitement of the ever-challenging environment of modern medicine; and

Are committed to achieving superior health outcomes for people living with rare and devastating diseases.

At PANTHERx, we know our employees are the driving force in what we do. We cultivate talent and encourage growth within PANTHERx so that our associates can continue to explore their interests and expand their careers. Guided by our mission to provide uncompromising quality every day, we continue our strategic growth to further reach those affected by rare diseases.

Join the PANTHERx team, and define your own RxARE future in healthcare!

Location: Pittsburgh, PA (Hybrid)

Classification: Exempt

Status: Full-time

Reports to: Senior Manager, Clinical Patient Engagement

Purpose

The Clinical Patient Engagement Manager will have a critical role in the leadership, development, and management of clinical content and programs aimed at driving adherence and improving outcomes across targeted specialty disease states. This role will oversee the clinical training structure and ensure that pharmacists assigned to RxARECARE programs are prepared to serve as rare disease experts in patient interactions.

Responsibilities

  • Oversees existing clinical programs for assigned RxARECARE programs by supporting internal and external stakeholders to drive optimal patient outcomes.
  • Leads the design and development of new clinical programs, including the execution of project plans, to deliver value for existing programs.
  • Conducts monthly clinical call quality reviews for all pharmacists assigned to programs, scores calls, and provides structured feedback.
  • Creates and maintains competency assessments for pharmacists and deliver targeted remedial training to ensure rare disease expertise.
  • Performs 1–2 live CE sessions annually focused on clinical professional development.
  • Leads internal journal clubs with clinicians assigned to their teams to foster continuous learning and clinical excellence.
  • Maintains a robust clinical library for their assigned rare programs.
  • Actively participates in Clinical Oversight to assess the impact of the clinical program design for assigned RxARECARE programs and contribute to the efforts of Clinical Oversight as directed by clinical management or leadership.
  • Prepares materials and presentations that can be used to update, educate, and influence various stakeholders across the organization including clinical program status reports, programs dashboards, and clinical outcomes and insights.
  • Independently manages multiple work streams and deliverables across RxARECARE programs to support project and organization goals.
  • Serves as the clinical pharmacy subject matter expert for assigned RxARECARE teams, answering questions for team members, patients, physicians, and partners.
  • Contributes to a collaborative, positive team environment.
  • Adheres to current accreditation standards, workplace policies and procedures.
  • Precepts students and interns.

Required Qualifications

  • Doctor of Pharmacy or Bachelor of Pharmacy from an ACPE accredited institution.
  • Minimum of three (3) years as a practicing, licensed pharmacist or completion of a pharmacy post graduate residency, PGY-1, or fellowship.
  • Holds an active, unrestricted pharmacist license in the United States or U.S. territories.
  • High level of independent judgment, individual initiative, and time management skills.
  • Ability to communicate effectively in a manner that is clear, logical, and consistent.
  • Capable of understanding and extrapolating information from primary literature.
  • Highest level of attention to detail and the ability to manage multiple projects simultaneously, adjusting priorities as needed and meeting deadlines.

Preferred Qualifications

  • Deep clinical knowledge base and basic understanding specialty pharmacy workflow
  • Advanced certification (e.g., BCPS, CSP, etc.) or completion of a pharmacy post graduate residency, PGY-1, or fellowship.
  • Experience developing, managing, and executing clinical programs.
  • Proficient in Microsoft Office (Word, Power Point, Excel, Teams).

Work Environment

This position operates in a home or professional office environment. This role routinely uses standard office equipment such as computers, phones, photocopiers, filing cabinets and fax machines.

Physical Demands

While performing the duties of this job, the employee is regularly required to see, talk, or hear. The employee frequently is required to sit; stand; walk; use hands and fingers to handle or feel; and reach with hands and arms. Visual acuity is necessary for tasks such as reading, observing surroundings, or working with various forms of data. Reasonable accommodation may be made to enable individuals with disabilities to perform the essential functions of the job.

Benefits:

Hybrid, remote and flexible on-site work schedules are available, based on the position. PANTHERx Rare Pharmacy also affords an excellent benefit package, including but not limited to medical, dental, vision, health savings and flexible spending accounts, 401K with employer matching, employer-paid life insurance and short/long term disability coverage, and an Employee Assistance Program! Generous paid time off is also available to all full-time employees, as well as limited paid time off for part-time employees. Of course we offer paid holidays too!

Equal Opportunity:

PANTHERx Rare Pharmacy is an equal opportunity employer, and does not discriminate in recruiting, hiring, promotions or any term or condition of employment based on race, age, religion, gender, ethnicity, sexual orientation, gender identity, disability, protected veteran's status, or any other characteristic protected by federal, state or local laws.