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Remote Rare Disease Jobs (NOW HIRING)

Mirum Pharmaceuticals

Zone Director, East

This role translates national strategy into regional impact, with a strong emphasis on rare disease ... Able to travel frequently, up to 70% overnight travel and has a valid drivers' license #LI-REMOTE ...

Mirum Pharmaceuticals

Zone Director, West

This role translates national strategy into regional impact, with a strong emphasis on rare disease ... Able to travel frequently, up to 70% overnight travel and has a valid drivers' license #LI-REMOTE ...

Travere

Senior Director, Program Management

San Diego, CA · On-site +1

$123K - $123K/yr

San Diego, USA- Remote Be a part of a global team that is inspired to make a difference in the lives of people living with rare disease. At Travere Therapeutics, we recognize that our exceptional ...

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$38.5K

$121.7K

$338.5K

How much do remote rare disease jobs pay per year?

As of Aug 7, 2026, the average yearly pay for remote rare disease in the United States is $121,720.00, according to ZipRecruiter salary data. Most workers in this role earn between $54,000.00 and $250,000.00 per year, depending on experience, location, and employer.

What is a remote rare disease specialist?

A Remote Rare Disease Specialist is a healthcare professional who focuses on diagnosing, managing, and supporting patients with rare diseases, while working remotely using telehealth and digital communication tools. They collaborate with patients, other healthcare providers, and researchers to provide expert guidance, coordinate care, and facilitate access to resources. This role is particularly valuable for patients in underserved or remote areas who may not have access to specialists locally.

What is the difference between Remote Rare Disease vs Remote Clinical Research Coordinator?

AspectRemote Rare DiseaseRemote Clinical Research Coordinator
Required credentialsMedical or scientific background, certifications in rare disease managementClinical research experience, certifications like CCRP or CCRC
Work environmentHealthcare, research institutions, biotech companiesResearch sites, hospitals, pharmaceutical companies
Employer and industry usageSpecialized in rare disease research and patient managementOverseeing clinical trials across various medical fields
Search and comparison intentUnderstanding roles in rare disease researchComparing clinical trial coordination roles

Remote Rare Disease professionals focus on managing and researching rare diseases, often requiring specialized medical knowledge. Remote Clinical Research Coordinators oversee clinical trials across multiple medical areas, including rare diseases. While both roles involve research and coordination, Remote Rare Disease roles are more specialized in rare conditions, whereas Clinical Research Coordinators have broader trial management responsibilities.

How does working remotely in a rare disease role impact collaboration with healthcare professionals and research teams?

Remote roles in the rare disease field often require creative approaches to collaboration, as team members and external partners may be located across different regions or even countries. Most communication is conducted through video calls, secure messaging platforms, and shared databases, which helps maintain strong connections despite the distance. You'll frequently coordinate with clinicians, researchers, and patient advocacy groups to share insights, review data, and develop strategies. Adapting to various time zones and maintaining clear, proactive communication are essential to ensure projects progress smoothly and everyone remains aligned on goals.

What are the key skills and qualifications needed to thrive as a remote rare disease specialist?

To thrive as a Remote Rare Disease Specialist, you need a solid background in medicine, genetics, or related health sciences, often supported by advanced degrees and clinical experience with rare diseases. Familiarity with telemedicine platforms, electronic health records (EHR), and specialized diagnostic tools or genetic testing software is common. Exceptional communication, empathy, and problem-solving skills are crucial for supporting patients and collaborating with multidisciplinary teams remotely. These competencies ensure accurate diagnosis, effective treatment coordination, and compassionate care for patients with complex, rare conditions in a virtual environment.
More about Remote Rare Disease jobs
What cities are hiring for Remote Rare Disease jobs? Cities with the most Remote Rare Disease job openings:
What are the most commonly searched types of Rare Disease jobs? The most popular types of Rare Disease jobs are:
What states have the most Remote Rare Disease jobs? States with the most job openings for Remote Rare Disease jobs include:
What job categories do people searching Remote Rare Disease jobs look for? The top searched job categories for Remote Rare Disease jobs are:
Remote Rare Disease jobs near you
Infographic showing various Remote Rare Disease job openings in the United States as of August 2026, with employment types broken down into 3% As Needed, 77% Full Time, 17% Part Time, and 3% Contract. Highlights an 92% Physical, 1% Hybrid, and 7% Remote job distribution, with an average salary of $121,720 per year, or $58.5 per hour.

Territory Business Manager, Rare Disease - Denver South

Alkermes

Denver, CO • Remote

$150K - $185K/yr

Full-time

Posted 8 days ago

Job description

In February 2026, Alkermes completed the acquisition of Avadel Pharmaceuticals plc. This acquisition added an approved product in the sleep medicine market.  

Territory Business Manager (TBM) will report directly to the Regional Business Director (RBD). Will be responsible for selling Alkermes products in the Denver territory and supporting promotional efforts on our products approved to treat certain sleep disorders. Ideal candidates should be proven sales achievers and live in the territory. This will be done by having thorough product, disease state and market knowledge and sound selling skills. He/she will utilize available resources to help educate healthcare providers. Finally, he/she will use their analytical ability to determine appropriate targets and will use approved resources accordingly.

Why join Team Alkermes?

Alkermes applies its decades of deep neuroscience expertise to develop medicines designed to help people living with complex and difficult-to-treat psychiatric and neurological disorders. A global biopharmaceutical company, headquartered in Ireland with U.S. locations in Massachusetts and Ohio, we seek to make a meaningful difference in the way people manage their diseases. We have a portfolio of proprietary commercial products for the treatment of alcohol dependence, opioid dependence, schizophrenia, bipolar I disorder and narcolepsy, and a pipeline of clinical and preclinical candidates in development for various psychiatric and neurological disorders.

We are proud to have been recognized as an employer of choice by many national organizations. In 2024 and 2025, we were certified as a Great Place to Work in the U.S. and named one of Massachusetts' Top Places to Work by the Boston Globe, a Best Place to Work in Greater Cincinnati by the Cincinnati Business Courier and recognized as a Best Place to Work in BioPharma by Fortune Magazine. 

Alkermes, Inc. is an equal employment opportunity employer and does not discriminate against any qualified applicant or employee because of race, creed, color, age, national origin, ancestry, religion, gender, sexual orientation, gender expression and identity, disability, genetic information, veteran status, military status, application for military service or any other characteristic protected by local, state or federal law.  Alkermes also complies with all work authorization and employment eligibility verification requirements of the Immigration and Nationality Act and IRCA.  Alkermes is an E-Verify employer.

MINIMUM QUALIFICATIONS:


BA/BS is required
5+ years successful pharmaceutical/biotech sales experience required
Must live in the geography and/or within 25 miles of key targeted customers in the geography
Driver's license must be in good standing
Must be able to demonstrate or secure appropriate credentialing, as may be required by healthcare providers for physical access to their facilities
The ability to travel, which may include overnight / weekend travel, up to 80% of the time, is required
 

PREFFERED QUALIFICATIONS:


Specialty/Rare Disease sales exp preferred
A passion for helping patients
Demonstrated superior organizational and administrative skills
Demonstrated past sales performance/success
Excellent communication skills, business acumen, and track record of cross-functional collaboration required
Strong analytical, strategic and influencing skills
 

The annual base salary for this position ranges from $150,000 to $185,000. In addition, this position offers a performance based sales incentive bonus targeted at forty five thousand dollars annually and eligibility to participate in our long term incentive program. Exact compensation may vary based on skills, training, knowledge, and experience. Alkermes offers a competitive benefits package. Additional details can be found on our careers website: www.alkermes.com/careers#working-here

#LI-remote

ESSENTIAL AREAS OF RESPONSIBILITY:


The TBM will demonstrate a strong understanding of all aspects of Alkermes products, related disease states and related products in the marketplace
The TBM will demonstrate strong selling skills through the use of approved sales aids, approved studies and reprints and through superior communication and listening skills with targeted healthcare providers. He/she will use selling skills that demonstrate competent use of all facets of the Alkermes selling model, including our Customer Engagement Model. He/she will demonstrate an ability to gain agreement for increased product use with appropriate patients from target healthcare providers
The TBM will demonstrate strong territory management skills by identifying and calling on appropriate healthcare provider targets with the required frequency to assure proper usage of Alkermes products. He/she will continually develop, review, update and maintain healthcare provider target lists based on the latest information and data
He/she will utilize all available resources and programs (Promotional Speaker Programs, etc.) to increase their business. He/she is prepared to discuss all aspects of territory business with RBD at any time
The TBM will develop business plans as required by the RBD and will perform all administrative tasks requested in a timely, accurate and truthful manner
The TBM will exercise fiscal control of operational expenses (car, gas, office supplies, telephone, postage, lodging, and meals,)
The TBM will demonstrate an ability to work productively with individuals in related positions including but not limited to other representatives, Field Reimbursement Managers, National Account Directors, Nurse Care Navigators and headquarters personnel
The TBM will abide by all Alkermes policies and regulations regarding promotional compliance

Apply