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Rare Disease Jobs (NOW HIRING)

The Rare Disease Specialist will compliantly market BioCryst products to our customers in the Detroit, MI area. #LI-REMOTE ESSENTIAL DUTIES & RESPONSIBILITIES: * Have "game changing" conversations ...

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How much do rare disease jobs pay per year?

As of Sep 1, 2026, the average yearly pay for rare disease in the United States is $121,720.00, according to ZipRecruiter salary data. Most workers in this role earn between $54,000.00 and $250,000.00 per year, depending on experience, location, and employer.

What is a rare disease?

A Rare Disease job involves working in roles focused on researching, developing treatments, and advocating for conditions that affect a small percentage of the population. These roles exist in pharmaceutical companies, biotech firms, healthcare organizations, and non-profits, spanning areas like drug development, regulatory affairs, patient advocacy, and medical affairs. Professionals in this field collaborate with researchers, clinicians, and policymakers to address unmet medical needs and improve patient outcomes.

What are common challenges faced by professionals working in the rare disease field?

Professionals working in the Rare Disease field often encounter challenges related to limited clinical data, small patient populations, and complex regulatory pathways. Collaborating closely with patient advocacy groups, regulatory bodies, and multidisciplinary teams is essential to overcome these obstacles. You may also need to navigate evolving therapeutic landscapes and work with innovative trial designs. However, these challenges make the work highly impactful and offer opportunities to contribute meaningfully to unmet medical needs and to advance your career as an expert in a specialized area.

What are the key skills and qualifications needed to thrive in the rare disease position, and why are they important?

To excel in a Rare Disease role, professionals typically need a background in life sciences, clinical research, or healthcare, often supported by advanced degrees such as MD, PharmD, or PhD. Familiarity with regulatory requirements, clinical trial management systems, and rare disease registries is crucial. Excellent communication, problem-solving, and collaboration skills set top performers apart in multidisciplinary teams. These competencies are vital for driving progress in developing treatments and support initiatives for populations with unique medical needs.

More about Rare Disease jobs

What cities are hiring for Rare Disease jobs?

Cities with the most Rare Disease job openings:

What are the most commonly searched types of Rare Disease jobs?

The most popular types of Rare Disease jobs are:

What states have the most Rare Disease jobs?

States with the most job openings for Rare Disease jobs include:

Infographic showing various Rare Disease job openings in the United States as of August 2026, with employment types broken down into 3% As Needed, 77% Full Time, 17% Part Time, and 3% Contract. Highlights an 92% Physical, 1% Hybrid, and 7% Remote job distribution, with an average salary of $121,720 per year, or $58.5 per hour.

Sales - Rare Disease Specialist (Detroit)

Biocryst

Michigan, ND โ€ข Remote

Full-time

Posted 13 days ago


Job description

COMPANY:

At BioCryst, we share a deep commitment to improving the lives of people living with hereditary angioedema (HAE) and other rare diseases. We leverage our expertise in structure-guided drug design to develop first-in-class or best-in-class oral small-molecule and injectable protein therapeutics. Our global headquarters is in Durham, North Carolina, we have a regional office in Boston, Massachusetts, and our employees span the globe across sites in multiple countries. We are proud of our culture of engagement and accountability that rewards people for innovative thinking and achievement of key objectives. For more information, please visit our website at www.biocryst.comor follow uson LinkedInand Instagram.


JOB SUMMARY:

The Rare Disease Specialist will compliantly market BioCryst products to our customers in the Detroit, MI area. #LI-REMOTE

ESSENTIAL DUTIES & RESPONSIBILITIES:

  • Have "game changing" conversations with our customers, compliantly utilizing effective selling techniques and marketing strategies to create and expand demand for any/all promoted brand(s) for which are responsible.
  • Develop and expand a thorough understanding of key customers.
  • Create, maintain and update an active customer database.
  • Develop strategies to effectively utilize marketing materials and programs.
  • Have a mastery of key account management.
  • Develop exceptional business plans with resource allocations that link to strong business results.
  • Be extremely customer-focused and able to build and foster strong positive relationships with key decision makers and opinion leaders.
  • Arrange and coordinate effective promotional programs within all promotional and regulatory guidelines.
  • Conduct essential field activities including, but not limited to, lunch and learns, customer in-services, and other compliant customer interactive activities.
  • Complete expense reports and other required administrative reports in an accurate and timely manner.
  • Report all call information in a timely fashion.
  • Attend training programs, conventions, and symposia, as requested.
  • Focus on the end results of the sales process, demonstrating personal accountability, a sense of urgency and commitment to achieve business objectives.
  • Exemplify strong collaboration and teamwork with internal and external stakeholders.
  • Proactively use resources and share best practices that lead to achieving or exceeding business goals.
  • Adhere to all company compliance guidelines, policy, and procedures.
  • Other duties as assigned.

EXPERIENCE & QUALIFICATIONS:

  • Bachelor's degree or equivalent required.
  • Minimum of 5 years of pharmaceutical and/or biotech selling experience.
  • Rare Disease and small company experience preferred.
  • Must live in or near the Detroit, MI area.
  • Academic/teaching institution experience preferred.
  • Start-up commercial experience a plus.
  • Existing relationships with key accounts within assigned geography are helpful.
  • Strong track record of successfully exceeding sales goals to include national awards such as President's Club.
  • Demonstrated success of selling in a territory where the candidate was the sole commercial salesperson.
  • Proven ability to formulate and implement effective rare disease sales skills and results.
  • Knowledge of relevant disease states and current treatments.
  • Excellent written and oral communication skills.
  • Strong business and analytical ability.
  • Proven ability to create and innovate, build and expand business and work both independently as well as in teams.
  • Ability to quickly assimilate complex information.
  • Excellent negotiation skills.
  • Knowledge of reimbursement.
  • Knowledge of territory.
  • Valid driver's license and clean driving record.
  • Ability to travel as necessary or required, which may include overnight and/or weekend travel.

The statements in this position description are intended to describe the general nature and level of work being performed by people assigned to this classification. They are not intended to be construed as an exhaustive list of responsibilities, duties, and skills required of personnel so classified. The manager may assign additional responsibilities and assignments from time to time.

BioCryst is an equal opportunity employer and is committed to providing equal employment opportunities without regard to age, race, religion, sex, sexual orientation, gender identity, national origin, Veterans status, disability and/or other protected class characteristics. Additionally, BioCryst is committed to achieving its business objectives in compliance with all federal, state and local law.

Equal Opportunity Employer/Protected Veterans/Individuals with Disabilities

This employer is required to notify all applicants of their rights pursuant to federal employment laws. For further information, please review the Know Your Rights notice from the Department of Labor.