ZipRecruiter

Log In

1

Rare Disease Jobs (NOW HIRING)

Soleno

Rare Disease Specialist- Mountain West

$190K/yr

Summary of Job (brief description) The Rare Disease Specialist role at Soleno will drive year two commercialization of DCCR and sales initiatives of Soleno's leading product candidate, DCCR, for the ...

Soleno

Rare Disease Specialist- Tennessee and Alabama

$190K - $215K/yr

Summary of Job (brief description) The Rare Disease Specialist role at Soleno will drive year two commercialization of DCCR and sales initiatives of Soleno's leading product candidate, DCCR, for the ...

previous page

Showing results 41-60

All JobsRare Disease Jobs

Rare Disease information

See salary details

$38.5K

$121.7K

$338.5K

How much do rare disease jobs pay per year?

As of Aug 8, 2026, the average yearly pay for rare disease in the United States is $121,720.00, according to ZipRecruiter salary data. Most workers in this role earn between $54,000.00 and $250,000.00 per year, depending on experience, location, and employer.

What is a rare disease?

A Rare Disease job involves working in roles focused on researching, developing treatments, and advocating for conditions that affect a small percentage of the population. These roles exist in pharmaceutical companies, biotech firms, healthcare organizations, and non-profits, spanning areas like drug development, regulatory affairs, patient advocacy, and medical affairs. Professionals in this field collaborate with researchers, clinicians, and policymakers to address unmet medical needs and improve patient outcomes.

What are the key skills and qualifications needed to thrive in the rare disease position, and why are they important?

To excel in a Rare Disease role, professionals typically need a background in life sciences, clinical research, or healthcare, often supported by advanced degrees such as MD, PharmD, or PhD. Familiarity with regulatory requirements, clinical trial management systems, and rare disease registries is crucial. Excellent communication, problem-solving, and collaboration skills set top performers apart in multidisciplinary teams. These competencies are vital for driving progress in developing treatments and support initiatives for populations with unique medical needs.

What are common challenges faced by professionals working in the rare disease field?

Professionals working in the Rare Disease field often encounter challenges related to limited clinical data, small patient populations, and complex regulatory pathways. Collaborating closely with patient advocacy groups, regulatory bodies, and multidisciplinary teams is essential to overcome these obstacles. You may also need to navigate evolving therapeutic landscapes and work with innovative trial designs. However, these challenges make the work highly impactful and offer opportunities to contribute meaningfully to unmet medical needs and to advance your career as an expert in a specialized area.

More about Rare Disease jobs
What cities are hiring for Rare Disease jobs? Cities with the most Rare Disease job openings:
What are the most commonly searched types of Rare Disease jobs? The most popular types of Rare Disease jobs are:
What states have the most Rare Disease jobs? States with the most job openings for Rare Disease jobs include:
What job categories do people searching Rare Disease jobs look for? The top searched job categories for Rare Disease jobs are:
Rare Disease jobs near you
Infographic showing various Rare Disease job openings in the United States as of August 2026, with employment types broken down into 3% As Needed, 77% Full Time, 17% Part Time, and 3% Contract. Highlights an 92% Physical, 1% Hybrid, and 7% Remote job distribution, with an average salary of $121,720 per year, or $58.5 per hour.

Rare Disease Specialist- Mountain West

Soleno

Remote

$190K/yr

Full-time

Re-posted 3 days ago

Job description

About Soleno Therapeutics Inc
Soleno is a biopharmaceutical company focused on the development and commercialization of novel therapeutics for the treatment of rare diseases based in Redwood City, CA.
At Soleno, we are driven by the unique and multi-faceted needs of the PWS community. Like these individuals, resilience is part of who we are - it is in our chromosomes - and our team is made up of exceptional colleagues whose collective efforts are woven together to deliver meaningful outcomes, both professionally and for those living with PWS.
We value collaboration, integrity, and respect. These characteristics have allowed us to forge strong, authentic bonds with the caregivers, patients, health care professionals (HCPs) and community members we serve. We are proud to work alongside them every step of the way.
Our employees are our greatest asset, and we're expanding across functions during this pivotal time. We invite you to join us in making an impact-and making history.We all share the most important goal of bringing solutions to the PWS community.
Summary of Job (brief description)
The Rare Disease Specialist role at Soleno will drive year two commercialization of DCCR and sales initiatives of Soleno's leading product candidate, DCCR, for the treatment of Prader-Willi syndrome (PWS). You will engage with healthcare professionals at multiple points-of-call and be a familiar and compassionate resource to caregivers and families managing the complex challenges of PWS, building trust and long-term relationships while providing education on Soleno's therapies. By understanding the unique physical, emotional, and psychological difficulties faced by PWS patients and their caregivers, you'll play a crucial role in supporting their care with empathy and dedication.
Mountain West Territory- states include Colorado, Utah, Wyoming, Montana and Idaho
Responsibilities
  • Engage a well-defined pool of medical specialists to build market development, raise brand awareness, and execute a territory strategy/account plan with precision, ensuring product success through launch and beyond.
  • Develop a territory strategy that is rooted in nurturing existing relationships and raising awareness.
  • Conduct regular field visits to ensure effective communication and address any issues that arise.
  • Engage providers and drive awareness across multiple healthcare specialists including pediatric endocrinology, adult endocrinology, psychiatry and primary care physicians that treat Prader Willi Syndrome.
  • Work to ensure that new and existing patients are identified and enrolled in treatment programs.
  • Segment clinics and identify key shareholders within target institutions.
  • Build and maintain strong relationships with HCPs, office staff, caregivers, and families. Gather insights and conduct post-call analysis to refine tactics based on the unique territory challenges and dynamics of the rare disease market.
  • Demonstrate a high level of emotional intelligence to adapt communication styles to fit the unique demands of HCPs and advocacy groups within the PWS community.
  • Routinely monitor and report on territory-level market dynamics and trends, including prescriber opinion, competitive activity, and developments in the PWS landscape.
  • Regularly report sales activities, performance metrics, and competitive insights to sales management.
  • Proactively foster effective working relationships with internal/external stakeholders at Soleno Therapeutics and drive agreement/decisions from multiple parties.
  • Collaborate across all commercial departments, including Patient Services, Medical Affairs, and others, ensuring alignment with external stakeholders in the rare disease space.
  • Participate in the development of sales strategies to meet quarterly and annual targets by tailoring tactics to address specific territory challenges.
  • Effectively prioritize and manage time, activities, and resources to engage with a network of healthcare professionals specializing in rare diseases.
  • Ensure compliance with company policies and industry regulations during all sales activities.
  • Maintain a positive and collaborative culture that aligns with the overall sales organization.
  • Maintain up-to-date knowledge of PWS and the healthcare landscape to support customer needs.

Qualifications
  • Bachelor's degree is required, advanced degree preferred.
  • A background in nursing, social worker, nutrition (as a registered dietitian), or a related field with rare disease experience is a plus.
  • At least 5-7 years of experience in the pharmaceutical industry with a proven track record in sales.
  • Previous launch experience highly preferred.
  • Prior experience in rare genetic disease or specialty sales is highly preferred.
  • A drive to serve the PWS community and a demonstrated compassionate approach to patient care and provider awareness.
  • Ability to work and thrive in a fast-paced, startup environment.
  • Strong analytical, communication, and influence skills.
  • Ability to travel 60% of the time.
  • Compliance and regulatory training background preferred.
  • Experience in pediatric endocrinology or diabetes highly preferred.

Salary Range: $190,000-$215,00
(Actual salary at the time of hire may vary and may be above or below the range based on various factors, including, but not limited to, the candidate's relevant qualifications, skills, and experience, as well as the location where this position may be filled.)

Apply