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IQVIA

Head, Pediatrics and Rare Disease COE

Durham, NC · Remote

$186K - $519K/yr

Head, Pediatrics and Rare Disease COE Location: Home-based in USA Job Overview The Head of the Pediatric and Rare Disease COE provides strategic medical and scientific leadership, subject matter ...

Soleno

Rare Disease Specialist- Tennessee and Alabama

$190K - $215K/yr

Summary of Job (brief description) The Rare Disease Specialist role at Soleno will drive year two commercialization of DCCR and sales initiatives of Soleno's leading product candidate, DCCR, for the ...

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How much do rare disease jobs pay per year?

As of Sep 1, 2026, the average yearly pay for rare disease in the United States is $121,720.00, according to ZipRecruiter salary data. Most workers in this role earn between $54,000.00 and $250,000.00 per year, depending on experience, location, and employer.

What is a rare disease?

A Rare Disease job involves working in roles focused on researching, developing treatments, and advocating for conditions that affect a small percentage of the population. These roles exist in pharmaceutical companies, biotech firms, healthcare organizations, and non-profits, spanning areas like drug development, regulatory affairs, patient advocacy, and medical affairs. Professionals in this field collaborate with researchers, clinicians, and policymakers to address unmet medical needs and improve patient outcomes.

What are common challenges faced by professionals working in the rare disease field?

Professionals working in the Rare Disease field often encounter challenges related to limited clinical data, small patient populations, and complex regulatory pathways. Collaborating closely with patient advocacy groups, regulatory bodies, and multidisciplinary teams is essential to overcome these obstacles. You may also need to navigate evolving therapeutic landscapes and work with innovative trial designs. However, these challenges make the work highly impactful and offer opportunities to contribute meaningfully to unmet medical needs and to advance your career as an expert in a specialized area.

What are the key skills and qualifications needed to thrive in the rare disease position, and why are they important?

To excel in a Rare Disease role, professionals typically need a background in life sciences, clinical research, or healthcare, often supported by advanced degrees such as MD, PharmD, or PhD. Familiarity with regulatory requirements, clinical trial management systems, and rare disease registries is crucial. Excellent communication, problem-solving, and collaboration skills set top performers apart in multidisciplinary teams. These competencies are vital for driving progress in developing treatments and support initiatives for populations with unique medical needs.

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Rare Disease jobs near you
Infographic showing various Rare Disease job openings in the United States as of August 2026, with employment types broken down into 3% As Needed, 77% Full Time, 17% Part Time, and 3% Contract. Highlights an 92% Physical, 1% Hybrid, and 7% Remote job distribution, with an average salary of $121,720 per year, or $58.5 per hour.

Associate Director, Commercial Training Rare Disease

Ipsen

Berkeley Heights, NJ • On-site

$143K - $210K/yr

Full-time

Medical, Dental, Vision, Life, Retirement, PTO

Re-posted 4 days ago

Job description

Title:
Associate Director, Commercial Training Rare Disease
Company:
Ipsen Biopharmaceuticals Inc.
About Ipsen:
Ipsen is a mid-sized global biopharmaceutical company with a focus on transformative medicines in three therapeutic areas: Oncology, Rare Disease and Neuroscience. Supported by nearly 100 years of development experience, with global hubs in the U.S., France and the U.K, we tackle areas of high unmet medical need through research and innovation.
Our passionate teams in more than 40 countries are focused on what matters and endeavor every day to bring medicines to patients in 88 countries. We build a workplace that champions human-centric leadership and fosters a culture of collaboration, excellence and impact. At Ipsen, every individual is empowered to be their true selves, grow and thrive alongside the company's success. Join us on our journey towards sustainable growth, creating real impact on patients and society!
For more information, visit us at https://www.ipsen.com/ and follow our latest news on LinkedIn and Instagram.
Job Description:
The Associate Director, Commercial Training, Rare Disease is responsible for the development of all products, disease state, competitive landscape & skills training for all field personnel within the Rare Disease Portfolio. The role involves development, operational planning and implementation of the full annual training program, primary facilitation of training classes, pull through of learning programs and skills training for field leadership and clinical sales specialists.
The Associate Director is responsible for agency project management and execution of newly developed training programs, including management of legal, regulatory & medical approval process of various training initiatives. Collection of best practices from global colleagues, and U.S. franchises are also in the scope of the role.
WHAT - Main Responsibilities
  • Coordinate and execute the delivery of field force training programs for the Rare Disease commercial team(s), including New Hire Training, Sustainment Training, and NSM/POA training.
  • Implement and enhance Rare training program, including evolution of the RARE training brand
  • Assess employees' skills, talents, performance and productivity and prepare written evaluations with advice for improvement
  • Oversee the training in all key areas of Rare training operations, including ordering of training materials, stocking, and shipping training materials
  • Research new training materials and tactics that might enhance our training procedures and provide value to our employees
  • On-board new hires and assign them training curriculum; suggestions of program enhancement are expected
  • Identify future training needs and create curriculum to facilitate that training
  • Search for gaps in training material or content and identify opportunities for improvement to create a best-in-class training experience
  • Collaboration with marketing, sales, and other departments to drive program development and implementation is a must
  • Contribute to the design, development, and analysis of training across functions and support efforts that drive improvements in field force effectiveness
    • Work closely with the HR team BOS Training Development Lead to maintain and deliver training content via the following platforms: IPSEN Global Learning Platform (iLearn LMS)
    • ACTO rapid eLearning development and deployment
    • ACTO iPad application
    • Facilitate on boarding to other essential systems for execution (Veeva, iEngage etc.)
    • Manage administration and execution of certification
  • Develop measurement of training effectiveness and implement throughout all training activities
  • Monitor program budgets and upwardly manage project scope as needed

HOW - Knowledge & Experience
Knowledge & Experience (essential):
  • At least 8 years biopharma commercial experience
  • Minimum of 2 years of experience in Rare Disease therapeutic area
  • Strong facilitation & presentation skills
  • Knowledge of selling principles

Knowledge & Experience (preferred):
  • Regional Field Trainer experience is a plus
  • GI/Hepatology experience strongly preferred
  • Knowledge of adult learning principles is a plus
  • Knowledge of pharmaceutical systems used for sales execution & implementation is strongly preferred (e.g. ACTO, Veeva, iEngage)

Education / Certifications (essential):
  • BA/BS degree is required, an advanced degree would be a plus

Language(s) (essential):
  • Fluent in English.

Compensation
The annual base salary range for this position is $143,250 - $210,100
This job is eligible to participate in our short-term incentives program. At Ipsen we are proud to offer a comprehensive employee benefits package, including 401(k) with company contributions, group medical, dental and vision coverage, life and disability insurance, short- and long-term disability insurance, as well as flexible spending accounts. Ipsen also provides parental leave, paid time off, a discretionary winter shutdown, well-being allowance, commuter benefits, and much more.
The pay range displayed above is the range of base pay compensation within which Ipsen expects to pay for this role at the time of this posting. Individual compensation within this range depends on a variety of factors, including, but not limited to, prior education and experience, job-related knowledge and demonstrated skills.
We are committed to creating a workplace where everyone feels heard, valued, and supported; where we embrace "The Real Us". The value we place on different perspectives and experiences drives our commitment to inclusion and equal opportunities. When we include diverse ways of thinking, we make more thoughtful decisions and discover more innovative solutions. Together we strive to better understand the communities we serve. This means we also want to help you perform at your best when applying for a role with us. If you require any adjustments or support during the application process, please let the recruitment team know. This information will be handled with care and will not affect the outcome of your application. Ipsen is an equal opportunity employer that strictly prohibits unlawful discrimination. We recruit, employ, train, compensate, and promote without regard to an individual's race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, mental/physical disability, medical condition, marital status, veteran status, or any other characteristic protected by law.

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