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Rare Disease Jobs (NOW HIRING)

Soleno

Rare Disease Specialist- Texas North

$190K/yr

Summary of Job (brief description) The Rare Disease Specialist role at Soleno will drive year two commercialization of DCCR and sales initiatives of Soleno's leading product candidate, DCCR, for the ...

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$38.5K

$121.7K

$338.5K

How much do rare disease jobs pay per year?

As of Aug 8, 2026, the average yearly pay for rare disease in the United States is $121,720.00, according to ZipRecruiter salary data. Most workers in this role earn between $54,000.00 and $250,000.00 per year, depending on experience, location, and employer.

What is a rare disease?

A Rare Disease job involves working in roles focused on researching, developing treatments, and advocating for conditions that affect a small percentage of the population. These roles exist in pharmaceutical companies, biotech firms, healthcare organizations, and non-profits, spanning areas like drug development, regulatory affairs, patient advocacy, and medical affairs. Professionals in this field collaborate with researchers, clinicians, and policymakers to address unmet medical needs and improve patient outcomes.

What are the key skills and qualifications needed to thrive in the rare disease position, and why are they important?

To excel in a Rare Disease role, professionals typically need a background in life sciences, clinical research, or healthcare, often supported by advanced degrees such as MD, PharmD, or PhD. Familiarity with regulatory requirements, clinical trial management systems, and rare disease registries is crucial. Excellent communication, problem-solving, and collaboration skills set top performers apart in multidisciplinary teams. These competencies are vital for driving progress in developing treatments and support initiatives for populations with unique medical needs.

What are common challenges faced by professionals working in the rare disease field?

Professionals working in the Rare Disease field often encounter challenges related to limited clinical data, small patient populations, and complex regulatory pathways. Collaborating closely with patient advocacy groups, regulatory bodies, and multidisciplinary teams is essential to overcome these obstacles. You may also need to navigate evolving therapeutic landscapes and work with innovative trial designs. However, these challenges make the work highly impactful and offer opportunities to contribute meaningfully to unmet medical needs and to advance your career as an expert in a specialized area.

More about Rare Disease jobs
What cities are hiring for Rare Disease jobs? Cities with the most Rare Disease job openings:
What are the most commonly searched types of Rare Disease jobs? The most popular types of Rare Disease jobs are:
What states have the most Rare Disease jobs? States with the most job openings for Rare Disease jobs include:
What job categories do people searching Rare Disease jobs look for? The top searched job categories for Rare Disease jobs are:
Rare Disease jobs near you
Infographic showing various Rare Disease job openings in the United States as of August 2026, with employment types broken down into 3% As Needed, 77% Full Time, 17% Part Time, and 3% Contract. Highlights an 92% Physical, 1% Hybrid, and 7% Remote job distribution, with an average salary of $121,720 per year, or $58.5 per hour.

Key Account Manager - Rare Disease

Taylor Strategy Partners

Dallas, TX • On-site

$160K - $190K/yr

Full-time

Medical, Dental, Vision, Life, Retirement, PTO

Re-posted 5 days ago

Job description

Description
You have what it takes: a strategic mindset, proven sales excellence, and the ability to build and nurture high-value client relationships that drive sustainable growth.
Tsp has partnered with a client on direct hire searches. Are you a relationship-driven strategic professional who thrives on helping healthcare stakeholders improve patient care? Join our team as a Rare Disease Key Account Manager and play a key role in driving growth across your territory. In this role, you'll be partnered with physicians and healthcare professionals, delivering impactful presentations and educating customers on the features, benefits, and value our solutions bring to their patients and practices.
The successful Rare Disease Key Account Manager will:
  • Drive Territory Growth & Access - Meet all territory objectives and call plan metrics while executing product access/distribution plans to ensure reliable availability and market penetration.
  • Build Strategic Account Plans - Develop targeted accounts with in-depth business plans reflecting local, regional, and national market forces to gain healthcare professional access and education opportunities.
  • Educate & Influence - Provide disease state education to healthcare professionals and staff, becoming an expert in assigned products, rare disease conditions, and competitive market dynamics.
  • Manage Territory Intelligence - Analyze business data, maintain proactive awareness of local dynamics, and develop actionable territory plans supported by strong administrative and analytics performance.
  • Maintain high standards through compliant business practices, sound judgment, responsible resource management, and adherence to all company policies.

Essential Requirements:
  • Bachelor's degree required
  • 5+ years successfully managing highly specialized pharmaceutical products in complex and challenging rare disease market(s). Key accounts experience preferred.
  • Documented track record of consistently high national rankings, achieving goals, and executive level awards
  • Significant rare disease knowledge, experience & relationships
  • Experience with Specialty Pharmacy, HUB Services and/or other complex product distribution models.
  • Ability to travel as required between various locations in the US (as high as 70-80% travel).
  • Self-Starter - Ability to perform with limited oversight and direction

Desired Requirements:
  • Proven ability to meet/exceed territory objectives with limited resources
  • Approaches business, inquiries and results with urgency. Takes a consistently proactive approach to their business
  • Strong technical acumen working with various systems, tools, and MS suite

The annual base salary for this position ranges from $160,000 to $190,000. The base salary range represents the anticipated low and high of the range for this position. Actual salary will vary based on various factors such as the candidate's qualifications, skills, competencies, and proficiency in the role. In addition, this role will include eligibility to earn commissions/bonus based on company and/or individual performance as well as Medical/Dental/Vision Insurance, Company paid Life Insurance, Short-term Disability and Long-term Disability, 401(k) plan with a generous employer match, Unlimited PTO and Paid Holidays.
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