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Rare Disease Jobs in Raleigh, NC (NOW HIRING)

IQVIA

Head, Pediatrics and Rare Disease COE

Durham, NC · Remote

$186K - $519K/yr

Head, Pediatrics and Rare Disease COE Location: Home-based in USA Job Overview The Head of the Pediatric and Rare Disease COE provides strategic medical and scientific leadership, subject matter ...

McKesson

Director, Rare Disease Operations

Cary, NC · On-site

The Director, Rare Disease Operations, will be responsible for overseeing the daily operations of our Rare Disease program, managing a team of customer service representatives, patient access ...

McKesson

Clinical Case Educator - Rare Disease

Cary, NC

$32.78 - $54.64/hr

With a multidisciplinary approach, we bring deep expertise to a complicated diseases like cancer and neurological conditions. Purpose The Clinical Case Educator is an important role in our team. The ...

McKesson

Clinical Case Educator - Rare Disease

Cary, NC

$32.78 - $54.64/hr

With a multidisciplinary approach, we bring deep expertise to a complicated diseases like cancer and neurological conditions. Purpose The Clinical Case Educator is an important role in our team. The ...

McKesson

Clinical Case Educator - Rare Disease

Cary, NC · On-site

$32.78 - $54.64/hr

With a multidisciplinary approach, we bring deep expertise to a complicated diseases like cancer and neurological conditions. Purpose The Clinical Case Educator is an important role in our team. The ...

McKesson

Clinical Case Educator - Rare Disease

Cary, NC · On-site

$32.78 - $54.64/hr

With a multidisciplinary approach, we bring deep expertise to a complicated diseases like cancer and neurological conditions. Purpose The Clinical Case Educator is an important role in our team. The ...

Sobi

QA Manager, GCP

Raleigh, NC · On-site

Making a positive impact to help ultra-rare disease patients who are in need of life saving treatments Due to the hybrid nature of the job, candidates must reside within commuting distance to Raleigh ...

Sobi

QA Manager, GCP

Raleigh, NC · On-site

$112K - $153K/yr

Making a positive impact to help ultra-rare disease patients who are in need of life saving treatments Due to the hybrid nature of the job, candidates must reside within commuting distance to Raleigh ...

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Rare Disease information

See Raleigh, NC salary details

$37.4K

$118.3K

$329K

How much do rare disease jobs pay per year?

As of Sep 1, 2026, the average yearly pay for rare disease in Raleigh, NC is $118,315.00, according to ZipRecruiter salary data. Most workers in this role earn between $52,500.00 and $243,000.00 per year, depending on experience, location, and employer.

What is a rare disease?

A Rare Disease job involves working in roles focused on researching, developing treatments, and advocating for conditions that affect a small percentage of the population. These roles exist in pharmaceutical companies, biotech firms, healthcare organizations, and non-profits, spanning areas like drug development, regulatory affairs, patient advocacy, and medical affairs. Professionals in this field collaborate with researchers, clinicians, and policymakers to address unmet medical needs and improve patient outcomes.

What are common challenges faced by professionals working in the rare disease field?

Professionals working in the Rare Disease field often encounter challenges related to limited clinical data, small patient populations, and complex regulatory pathways. Collaborating closely with patient advocacy groups, regulatory bodies, and multidisciplinary teams is essential to overcome these obstacles. You may also need to navigate evolving therapeutic landscapes and work with innovative trial designs. However, these challenges make the work highly impactful and offer opportunities to contribute meaningfully to unmet medical needs and to advance your career as an expert in a specialized area.

What are the key skills and qualifications needed to thrive in the rare disease position, and why are they important?

To excel in a Rare Disease role, professionals typically need a background in life sciences, clinical research, or healthcare, often supported by advanced degrees such as MD, PharmD, or PhD. Familiarity with regulatory requirements, clinical trial management systems, and rare disease registries is crucial. Excellent communication, problem-solving, and collaboration skills set top performers apart in multidisciplinary teams. These competencies are vital for driving progress in developing treatments and support initiatives for populations with unique medical needs.

What are popular job titles related to Rare Disease jobs in Raleigh, NC?

For Rare Disease jobs in Raleigh, NC, the most frequently searched job titles are:

What job categories do people searching Rare Disease jobs in Raleigh, NC look for?

The top searched job categories for Rare Disease jobs in Raleigh, NC are:

What cities near Raleigh, NC are hiring for Rare Disease jobs?

Cities near Raleigh, NC with the most Rare Disease job openings:

Rare Disease jobs near you
Infographic showing various Rare Disease job openings in Raleigh, NC as of August 2026, with employment types broken down into 4% As Needed, 90% Full Time, 4% Part Time, and 2% Contract. Highlights an 82% In-person, 2% Hybrid, and 16% Remote job distribution, with an average salary of $118,315 per year, or $56.9 per hour.

Head, Pediatrics and Rare Disease COE

IQVIA, Inc.

Durham, NC • On-site

$186K - $519K/yr

Full-time

Posted 8 days ago

IQVIA rating

8.1

Company rating: 8.1 out of 10

Based on 53 frontline employees who took The Breakroom Quiz

63rd of 226 rated it services

Job description

Job Level: Head, Pediatrics and Rare Disease COE
Location: Home-based in USA
Job Overview
The Head of the Pediatric and Rare Disease COE provides strategic medical and scientific leadership, subject matter experience and expertise to IQVIA, in pediatrics and rare disease. They independently lead activities that include but are not necessarily limited to early engagement of potential customers, proposal development in response to RFPs, participation in client proposal bid defense meetings, act as a medical director and subject matter expertise as a consultant throughout the research and development lifecycle and the duration of clinical trials, and/or as an independent customer solution. They collaborate across the organization to ensure that all of IQVIA's resources are fully leveraged in opportunities. The lead the growth of our pediatrics and rare disease franchise. Participation in thought leadership activities is highly encouraged. May have 1-3 direct reports.
Role & Responsibilities
  • Lead strategic direction of Pediatrics and Rare Disease as the therapeutic area head
  • Demonstrate oversight in strategic proposal development in conjunction with leaders of other functions.
  • Act as a consultant to their team members throughout the research and development life cycle and the duration of clinical trials.
  • Typically requires a minimum of ten years of prior relevant experience. Will have a minimum of five years of experience outside of the training period with the biopharmaceutical industry either directly or indirectly.

Additional Work Experience
  • Typically requires a minimum of ten years of prior relevant experience. Will have a minimum of five years of experience outside of the training period with the biopharmaceutical industry either directly or indirectly.
  • Requires certification of the equivalent there of and practical knowledge in leading and managing the execution of processes, projects and tactics within the research and development therapeutic area.

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IQVIA is a leading global provider of clinical research services, commercial insights and healthcare intelligence to the life sciences and healthcare industries. We create intelligent connections to accelerate the development and commercialization of innovative medical treatments to help improve patient outcomes and population health worldwide. Learn more at https://jobs.iqvia.com
IQVIA is proud to be an equal opportunity employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, disability, status as a protected veteran, or any other status protected by applicable law. https://jobs.iqvia.com/eoe
IQVIA is committed to integrity in our hiring process and maintains a zero tolerance policy for candidate fraud. All information and credentials submitted in your application must be truthful and complete. Any false statements, misrepresentations, or material omissions during the recruitment process will result in immediate disqualification of your application, or termination of employment if discovered later, in accordance with applicable law. We appreciate your honesty and professionalism.
The potential base pay range for this role, when annualized, is $186,300.00 - $519,000.00. The actual base pay offered may vary based on a number of factors including job-related qualifications such as knowledge, skills, education, and experience; location; and/or schedule (full or part-time). Dependent on the position offered, incentive plans, bonuses, and/or other forms of compensation may be offered, in addition to a range of health and welfare and/or other benefits.

What IQVIA employees say

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About IQVIA

Sourced by ZipRecruiter

At IQVIA, we are passionate about helping customers and partners improve results and patient outcomes. Everything we do contributes to this vision for creating a healthier world. In today’s healthcare environment, it’s not only about how much data, information, and technology you have at your fingertips – it’s what you do with it. IQVIA is focused on making intelligent connections for customers across the entire healthcare ecosystem to help you drive healthcare forward. Whether that means partnering with novel technology companies to boost patient engagement, leveraging AI & machine learning to accelerate results, or using decentralized trials to reach the right patients wherever they are – we are always looking for smarter ways to move you forward.

Industry

Health care and social assistance

Company size

10,000+ Employees

Headquarters location

Durham, NC, US

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