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Spina Bifida Jobs (NOW HIRING)

The Individuals served children, teens, and adults with developmental disabilities such as Intellectual Disabilities, Autism, Down Syndrome, Cerebral Palsy, Spina Bifida, Fragile X Syndrome, Fetal ...

Lead and participate in multi‑disciplinary clinics including Spina Bifida, Fontan, Stone Clinic, Long‑Term Follow‑up from BMT, Lupus Clinic, and others. * Support care of patients with ...

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Physical Therapist

Oakland, CA · On-site

$1.9K - $2.4K/wk

Chronic long-term physical disability such as Cerebral palsy, post-amputation from cancer, Muscular dystrophy, spina bifida, traumatic brain injuries, arthrogryposis, osteogenesis imperfecta.

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How much do spina bifida jobs pay per year?

As of Jul 6, 2026, the average yearly pay for spina bifida in the United States is $55,953.00, according to ZipRecruiter salary data. Most workers in this role earn between $40,500.00 and $63,500.00 per year, depending on experience, location, and employer.

What is Spina Bifida?

Spina Bifida is a birth defect that occurs when the spine and spinal cord don't form properly during early pregnancy. It is a type of neural tube defect that can range from mild to severe, depending on the size and location of the opening in the spine. People with Spina Bifida may experience physical and neurological complications, such as mobility issues, bladder and bowel problems, and learning difficulties. Early diagnosis and intervention can help manage symptoms and improve quality of life.

What is the difference between Spina Bifida vs Pediatric Neurologist?

AspectSpina BifidaPediatric Neurologist
Required CredentialsMedical degree, specialized in congenital conditionsMedical degree, pediatric neurology fellowship
Work EnvironmentHospitals, clinics, rehabilitation centersHospitals, clinics, academic settings
Industry UsageHealthcare, congenital disorder managementHealthcare, neurological disorder diagnosis and treatment

Spina Bifida is a congenital condition requiring medical management, while a Pediatric Neurologist is a healthcare professional specializing in neurological disorders in children, including conditions like Spina Bifida. The former is a diagnosis, the latter a specialist who treats such conditions.

What are some common challenges faced by nurses working with Spina Bifida patients, and how can they prepare for these challenges?

Nurses working with Spina Bifida patients often encounter challenges such as managing complex care needs, coordinating multidisciplinary treatments, and addressing both physical and psychosocial aspects of patient health. These patients may require assistance with mobility, bowel and bladder management, and frequent monitoring for complications. To prepare, nurses should seek specialized training in neurodevelopmental disorders, collaborate closely with physical therapists and social workers, and stay updated on best practices for patient-centered care. Strong communication skills and a compassionate approach are essential for supporting both patients and their families.

What are the key skills and qualifications needed to thrive as a Spina Bifida specialist, and why are they important?

To thrive as a Spina Bifida specialist, you need in-depth medical knowledge of neural tube defects, pediatric neurology, and rehabilitation, usually supported by an MD or relevant advanced clinical degree. Familiarity with diagnostic imaging tools, electronic medical records, and assistive devices is essential. Compassion, patient advocacy, and strong interdisciplinary communication are crucial soft skills for supporting patients and their families. These skills ensure comprehensive, empathetic care and effective management of the complex needs associated with Spina Bifida.
More about Spina Bifida jobs
What are the most commonly searched types of Spina Bifida jobs? The most popular types of Spina Bifida jobs are:
What states have the most Spina Bifida jobs? States with the most job openings for Spina Bifida jobs include:
Infographic showing various Spina Bifida job openings in the United States as of June 2026, with employment types broken down into 50% Full Time, and 50% Part Time. Highlights an 100% In-person job distribution, with an average salary of $55,953 per year, or $26.9 per hour.
Spina Bifida Nurse Coordinator (RN)

Spina Bifida Nurse Coordinator (RN)

Kennedy Krieger Institute

Baltimore, MD • On-site

$71K - $127K/yr

Full-time, Part-time

Medical, Dental, Vision, Retirement, PTO

Posted 9 days ago


Kennedy Krieger Institute rating

7.9

Company rating: 7.9 out of 10

Based on 19 frontline employees who took The Breakroom Quiz


Job description

About Kennedy Krieger Institute

Kennedy Krieger is an approved site for the Nurse Corps Loan Repayment program! More info can be found here: https://bhw.hrsa.gov/funding/apply-loan-repayment#nclrp

Kennedy Krieger Institute leads the way in translating scientific advances into new therapies and educational interventions, while providing an inspirational environment for training tomorrow’s leaders in the field. These successes benefit millions of children, adolescents, and adults around the world. Kennedy Krieger Institute offers more than 55 outpatient clinics, home and community programs, education, research, pediatric neurobehavioral and rehabilitation/feeding inpatient units and a day hospital.

This position is 20 hours per week, working Wednesday from 12:30pm-4:30pm (remote) and Thursday and Friday 8:30am-5:00pm.

Benefits You Will Receive

  • · $10,500/year tuition advancement/reimbursement for employees earning undergrad and graduate degrees (pro-rated for 16-39 hours/week)
  • · 50% college tuition grant for dependents up to $32,000/year for eligible employees budgeted 30-40 hours per week who have 5 years of service or more.
  • · Recently increased differentials
  • · Student loan repayment for employees budgeted 30-40 hours per week ($100 per month up to $10,500)
  • · Bonus incentive for a masters degree
  • · Bonus incentive for nursing certification
  • · Medical, Dental, Vision (active the month after you attend HR) most places make you wait 3-6 months)
  • · Enhanced Mental Health Benefits
  • · 401K Automatic 3% employer-funded “base contribution” with additional 1.5%-3% based on years of service
  • · Sick and Vacation accrual upon first day of work
  • · Dependent Care Flexible Spending Account (Child Care Spending Account)
  • $2,000 for each eligible child through the age of 6; $600 for each child age 7-10
  • · Progressive Career Ladder with salary increase
  • · Program to earn free CEUs
  • · Free secure and monitored parking

Responsibilities

  • · Work within a multi-disciplinary team (PM&R, PT, OT, Neuropsychology, Social Work, Ortho, Urology, and Nephrology) to provide care coordination for pediatric and adult patients with Spina Bifida or other related conditions (i.e. tethered cord).
  • · Partner with patients, families, case managers, outside specialists, school nurses, etc. to address yearly medical, imaging, and lab recommendations (as defined by their providers and the Guidelines for the Care of People with Spina Bifida), with an emphasis on fostering sustainability and patient independence.
  • · Triage and address patient needs daily through various communication platforms (Epic, E-mail, phone calls).
  • · Participate in the multidisciplinary clinic every other week.

Qualifications

  • Education: Graduation from an accredited school of nursing. BSN or enrolled in a BSN program to be completed within 2 ½ years of hiring date.
  • Experience: Minimum of 2 years of clinical experience required and minimum of 1 year pediatric experience preferred.
  • License: Active, unencumbered Registered Nurse license from Maryland or a compact state.
  • Certification: Current CPR certification that included hands on skills

USD $71,518.51/Yr.
USD $127,585.95/Yr.

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