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Sickle Cell Foundation Jobs (NOW HIRING)

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Sickle Cell Foundation information

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How much do sickle cell foundation jobs pay per hour?

As of Jun 28, 2026, the average hourly pay for sickle cell foundation in the United States is $21.64, according to ZipRecruiter salary data. Most workers in this role earn between $16.83 and $27.16 per hour, depending on experience, location, and employer.

What is the difference between Sickle Cell Foundation vs Hematology Nurse?

AspectSickle Cell FoundationHematology Nurse
CredentialsTypically requires a degree in healthcare or social work, plus specialized knowledge of sickle cell diseaseRegistered Nurse (RN) license, with hematology or sickle cell certification often preferred
Work EnvironmentCommunity health centers, advocacy organizations, research institutionsHospitals, clinics, hematology departments
Employer & IndustryNonprofits, healthcare organizations focused on sickle cell diseaseHospitals, clinics, healthcare facilities

While both roles focus on sickle cell disease, the Sickle Cell Foundation primarily involves advocacy, education, and community outreach, whereas a Hematology Nurse provides direct patient care within clinical settings. Understanding these differences helps in choosing the right career path or job search focus.

Can you get paid for having sickle cells?

A Sickle Cell Foundation job role typically involves advocacy, research, or healthcare support, not direct payment for having sickle cell disease. Individuals with sickle cell disease may qualify for disability benefits or assistance programs, but they are not paid for the condition itself. Employment and compensation depend on the specific job and applicable social support systems.

What is a Sickle Cell Foundation?

A Sickle Cell Foundation is an organization dedicated to supporting individuals affected by sickle cell disease through advocacy, education, research, and patient services. These foundations work to raise awareness about the disease, provide resources for patients and families, and often fund or promote research for better treatments and a potential cure. They may also offer community programs, counseling, and assistance with navigating healthcare services. Overall, their mission is to improve the quality of life for people living with sickle cell disease.

Did Ryan Clark know he had sickle cell?

Ryan Clark, a former NFL player, was diagnosed with sickle cell trait, which is a carrier condition that usually does not cause symptoms. As a professional athlete, he was aware of his sickle cell status, which is important for managing health risks during intense physical activity. Sickle cell trait is often identified through screening tests, which are common in medical evaluations for athletes and military personnel.

Is SC as bad as SS?

Sickle Cell Foundation roles often involve education and support for individuals with sickle cell disease. Sickle cell disease has different types, with SS being the most severe form, characterized by frequent pain crises and complications, while SC is generally milder but can still cause health issues. Job responsibilities may include patient advocacy, medical knowledge, and community outreach, regardless of the specific sickle cell type.

What are some typical responsibilities for staff working at a Sickle Cell Foundation?

Staff at a Sickle Cell Foundation often engage in a variety of responsibilities, including organizing community outreach events, providing education and counseling to patients and families, coordinating with healthcare providers, and managing support programs. They may also be involved in advocacy efforts, fundraising, and data collection for research initiatives. Collaboration with medical professionals, volunteers, and other nonprofit organizations is common, making teamwork and strong communication skills essential for success in this environment.

What are the key skills and qualifications needed to thrive as a Sickle Cell Foundation Program Coordinator, and why are they important?

To thrive as a Sickle Cell Foundation Program Coordinator, you need a background in public health, healthcare administration, or social work, often with a relevant degree or certification. Familiarity with data management systems, grant writing, and patient education tools is typically required. Strong interpersonal skills, cultural sensitivity, and organizational abilities help build community trust and effectively manage outreach programs. These competencies are essential for delivering impactful services, fostering community engagement, and ensuring efficient program operations in support of individuals affected by sickle cell disease.

What jobs pay 2000 a day?

High-paying jobs that can pay around $2,000 a day typically include specialized roles such as surgeons, anesthesiologists, corporate lawyers, and certain senior executives. These positions often require advanced education, certifications, extensive experience, and work in high-stakes or demanding environments. Freelance consulting, investment banking, and some skilled trades may also reach this earning level with sufficient expertise and client volume.
More about Sickle Cell Foundation jobs
What cities are hiring for Sickle Cell Foundation jobs? Cities with the most Sickle Cell Foundation job openings:
What states have the most Sickle Cell Foundation jobs? States with the most job openings for Sickle Cell Foundation jobs include:
What job categories do people searching Sickle Cell Foundation jobs look for? The top searched job categories for Sickle Cell Foundation jobs are:
Infographic showing various Sickle Cell Foundation job openings in the United States as of June 2026, with employment types broken down into 1% As Needed, 61% Full Time, 28% Part Time, and 10% Contract. Highlights an 92% Physical, 2% Hybrid, and 6% Remote job distribution, with an average salary of $45,021 per year, or $21.6 per hour.
Sickle Cell Specialist, Sickle Cell Disease (Dallas)

Sickle Cell Specialist, Sickle Cell Disease (Dallas)

Agios Pharmaceuticals Inc

Cambridge, MA • On-site

Full-time

Posted 15 days ago


Job description

Sickle Cell Specialist, Sickle Cell Disease (Dallas)

Who we are:

At Agios, we are fueled by connections to transform rare diseases. We foster an inclusive, collaborative culture - one that sparks bold thinking and strengthens our connections with each other and with the rare disease communities we serve. We embrace diverse backgrounds with respect, active listening, and a commitment to inclusion - because our differences shape how we hire, collaborate, and innovate. Our team's proven track record of executional excellence, combined with our depth of expertise and dedication, enables us to develop innovative medicines that reflect the priorities of rare disease communities. Our commitment is more than scientific - it's deeply personal, grounded in the meaningful connections we have built. To learn more, visit www.agios.com and follow Agios on LinkedIn and X.

The impact you will make:

We are seeking individuals with a demonstrated track record of success in launching rare diseases medicines and who are motivated by building durable markets in complex, underserved therapeutic areas.

The Sickle Cell Specialist should possess an entrepreneurial "start-up" mentality and values consistent with the patient and science focused Agios culture.

They will be energized by the opportunity to earn trust, advance disease education, and prepare the ecosystem for long-term impact which will lay the foundation for the success of Mitapivat and Agios' pipeline of transformative rare genetic disease treatments.

The Sickle Cell Specialist (SCS) will report to a Regional Business Director and will be responsible for raising awareness of Sickle Cell Disease (SCD) and the need for disease education in SCD and the treatment of hemolytic anemia. The SCS will have territory level goals focused on identifying appropriate patients, advancing disease education, and supporting treatment readiness in anticipation of a potential future approval. Additionally, the SCS will be responsible for raising awareness across their respective geographies in anticipation of the initial US approval of Mitapivat for Sickle Cell Disease.

Territory to include these major markets: Dallas, Little Rock, Fort Worth, OKC.

This is a field-based role requiring consistent in-person engagement across priority accounts within the territory.

What you will do:

  • As a Sickle Cell Specialist, you are the territory business owner, responsible for developing and executing a long-term market building strategy across your geography
  • Lead consistent, multi-touch disease education engagements to advance understanding of SCD pathophysiology, disease burden, and unmet need
  • Develop an integrated plan for your geography reflecting deep analysis, clear prioritization, and disciplined execution
  • Work with all field teams and marketing to ensure alignment on objectives, strategies, and communication
  • Develop credible, trust-based relationships with key customers and continue to build knowledge of the sickle cell marketplace
  • Collaborate with Regional Medical Affairs and Market Access colleagues to ensure seamless coordination and timely patient support
  • Advance appropriate patients toward treatment readiness while continuously assessing performance metrics and adapting strategies
  • Develop strong internal and external relationships to enable appropriate, compliant business partnerships
  • Ensure appropriate and compliant utilization of approved corporate, promotional and other resources to facilitate customer engagements
  • Represent Agios positively and professionally at company meetings and conferences, ensuring your activities are compliant with laws, regulations, policies and guidelines
  • Achieve or exceed sales forecasts and targets, within budget
  • Lead ad-hoc initiatives to contribute to the business as requested

What Success Looks Like in this role:

  • Priority HCPs view you as a trusted SCD partner, not just a product representative
  • Disease education conversations deepen over time and lead to earlier identification of appropriate patients
  •  Accounts are prepared to act efficiently once therapy is approved for appropriate patients
  •  Crossfunctional partners rely on your insights to inform strategy and execution

What you bring:

  • Bachelor's degree required, Scientific degree a plus
  • Proven track record of success in Rare Disease sales; minimum 5 years' experience in rare disease.
  • Sickle Cell/Hematology/Oncology sales experience preferred
  • Experience in building disease awareness and launching first in class therapies
  • Demonstrated business acumen with account management skills, data analysis and understanding, and competitive selling
  • Demonstrated ability to translate complex clinical and scientific concepts into credible, compliant dialogue
  • Demonstrated cross functional collaboration with internal stakeholders including marketing, medical affairs, market access, patient services, and sales operations
  • Demonstrated knowledge of the payer and clinical landscape, especially in specialty & rare diseases
  • Results-oriented with ability to thrive in a fast-paced, entrepreneurial environment
  • Ability to navigate ambiguity and drive results
  • Strong, resourceful, self-starter with an innovative mindset and ability to develop and execute new business solutions
  • Extraordinary commitment to customer experience and standards of excellence
  • Willingness to travel extensively across large geographies
  • Established relationships with Hematology/Oncology HCPs within designated geography strongly preferred
  • Prior experience launching rare disease products strongly preferred
  • Experience leading regional and/or national initiatives strongly preferred
  • Experience working in diseases with access challenges, health equity considerations, or historically underserved patient populations is strongly preferred

Travel Requirements:

Both virtual or in-person meetings are facilitated as needed and appropriate. Travel requirement will be an average of 50-60% within the territory focusing on the major market areas of Houston and Dallas.

Concerned that you don't check off every box in the requirements listed above? Please apply anyway! At Agios, we value each other's differences and recognize that teams thrive when everyone brings their unique experiences to the table. We are dedicated to building an inclusive, diverse, equitable, and accessible environment where all employees can bring their whole selves to work. If you're excited about this role but your previous experience doesn't align perfectly with the job description, we still encourage you to apply. You may be just the right candidate for this role or another opening!

Work Location:

Location Specific - Field/Remote: This is a remote based field position. Employees in field roles must reside within their designated territory. Consistent in-person presence with priority accounts is expected. Travel may be required commensurate to the above job description and/or to attend team meetings and other company events.

What we will give you:

  • Deliberate Development. Your professional growth as one of our top priorities.
  • Flexibility. We're all about individual needs. We embrace different perspectives, work styles, health and wellness approaches, care of families and productivity. When you're at your best, we're at our best.
  • Premium benefits package. We invest in the health, wellbeing, and security of our people with a premium benefits package that is well-rounded and flexible to help meet the varied personal and professional needs of every member of our team. For more detail on the benefits we offer at Agios, visit the Inside Agios section of our website.
  • Competitive and equitable performance-based compensation. This includes base salary and both short- and long-term incentives that are connected to our business strategy and vary based on individual and company performance.
    • The current base salary range for this position is expected to be between $152,440 and $228,660 annualized; final salary will be determined based on various factors including, but not limited to, years of relevant experience, job knowledge, skills and proficiency, degree/education, and internal comparators
  • Incentive design that recognizes both foundational market building and long-term value creation.
  • Psychological safety. We support an environment of fearlessness. We want you to share your ideas, speak candidly and take data-informed risks to help push the boundaries.
  • Commitment to diversity. We strive to foster a welcoming workplace where everyone can thrive. We're continuously looking to improve the inclusivity of our workforce.
  • Commitment to community. We're an active participant in the communities that surround us - the communities where we live, and the community of people and their loved ones in need of better treatment options for conditions that are often overlooked.

Interested in learning more about what makes our culture unique? Visit the Inside Agios section of our website.

Employment Type: Full time