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Genetics Nonprofit Jobs (NOW HIRING)

Not for profit Audit Manager

New York, NY ยท On-site +1

$115K - $130K/yr

Not for profit Audit Manager Not for Profit Audit Manager We are an Established CPA Leader in the ... genetic information, registered domestic partner status, marital status, status as a crime victim ...

Sanford Health is one of the largest and fastest-growing not-for-profit health systems in the ... Current genetics team consists of: one medical geneticist specializing in the areas of medical ...

Sanford Health is one of the largest and fastest-growing not-for-profit health systems in the ... Current genetics team consists of: one medical geneticist specializing in the areas of medical ...

Audit Manager (Non-Profit)

Hazlet, NJ ยท Hybrid

$110K - $150K/yr

... status, genetic information or any other basis protected by applicable federal, state, or local ... #non-profit-financial-statement-audit-prep #tier3

New

Who We Are We are a group of individuals passionate about genetic discovery. 23andMe Research Institute is a nonprofit medical research organization that enables people everywhere to access their ...

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Genetics Nonprofit information

What is the difference between Genetics Nonprofit vs Genetic Counselor?

AspectGenetics NonprofitGenetic Counselor
Required CredentialsTypically a bachelor's or master's in genetics, biology, or related fieldMaster's in Genetic Counseling and certification (ABGC)
Work EnvironmentNonprofit organizations, research institutions, community outreachHospitals, clinics, healthcare settings
Employer & Industry UsageNonprofit sector focusing on education, advocacy, researchHealthcare industry providing patient counseling and support

Genetics Nonprofit roles focus on research, education, and advocacy within nonprofit organizations, often requiring a background in genetics or biology. Genetic Counselors work directly with patients in healthcare settings, providing personalized risk assessments and support, and require specialized certification. While both roles involve genetics, their work environments and primary functions differ significantly.

What are the key skills and qualifications needed to thrive in a Genetics Nonprofit role, and why are they important?

To thrive in a Genetics Nonprofit role, you typically need a background in genetics or life sciences, experience in program management, and knowledge of public health or advocacy, often supported by a relevant degree. Familiarity with grant writing, donor management software, and regulatory compliance systems is highly valuable. Strong communication, collaboration, and organizational skills help you build relationships with stakeholders and effectively promote the nonprofit's mission. These skills are crucial for advancing research, raising awareness, and securing funding to drive impactful change in the genetics field.

What are some common challenges faced by professionals working in a genetics nonprofit organization?

Professionals in genetics nonprofits often face challenges related to balancing scientific research with public outreach and fundraising efforts. They may need to translate complex genetic concepts into accessible language for diverse audiences, including donors, policymakers, and the general public. Additionally, working in a nonprofit environment can mean limited resources and the necessity to wear multiple hats, such as managing grants, advocacy initiatives, and partnership development. Collaboration across multidisciplinary teams is common, requiring strong communication and adaptability.

What is a genetics nonprofit?

A genetics nonprofit is an organization dedicated to advancing research, education, advocacy, or support related to genetics and genetic disorders without seeking to make a profit. These organizations may fund scientific studies, offer resources to patients and families, promote awareness, and influence public policy to improve health outcomes. Their work often involves collaboration with scientists, healthcare providers, and communities to further understanding of genetics and support those affected by genetic conditions.
Infographic showing various Genetics Nonprofit job openings in the United States as of June 2026, with employment types broken down into 75% Part Time, and 25% Contract. Highlights an 75% In-person, and 25% Remote job distribution.
ASHG Genetics & Policy Education Fellow

ASHG Genetics & Policy Education Fellow

AMERICAN SOCIETY OF HUMAN GENETICS

Rockville, MD โ€ข On-site

$77K/yr

Contractor

Posted 17 days ago


Job description

For priority consideration apply by May 30, 2026.

Job purpose

Reporting to the Associate Director, Advocacy & Public Affairs, the Genetics & Policy Fellow will participate in a fellowship program designed to provide hands-on experience at the intersection of science policy, education, and public engagement related to genetics and genomics. The Fellow will also work alongside the Senior Director, Strategic Content and Scientific Programs, and other staff leaders.

The fellow will gain a comprehensive understanding of how nonprofit organizations, government entities, and other stakeholders work together to shape public policy, professional education, and public understanding of genetics and genomics. Through a combination of policy-focused work and education and engagement initiatives, the fellow will contribute meaningfully to advocacy, education, and outreach efforts that support the genetics and genomics community.

This is a contract position for 1 year that is renewable for a second year, funding permitting. The initial Fellowship period is July 1, 2026 to June 30, 2027.

Major Duties & Responsibilities

Science Policy and Advocacy

  • Search for, summarize, and analyze scientific information for policy relevance and implications
  • Monitor and analyze proposed legislation, congressional activity, and federal funding related tohumangenetics and genomics
  • Draft a wide variety of policy-related materials, including position statements, issue briefs, testimony, budget justifications, memos, and calls to action
  • Facilitate advocacy certificate program for trainees; develop training materials to prepare members and stakeholders for advocacy activities
  • Draft concise memos and background documents summarizing scientific and technical information for non-scientific audiences
  • Support engagement with policymakers and legislative staff, including preparation for meetings and briefings

Education

  • Develop, update, andmaintaineducational resources onhumangenetics and genomics for diverse audiences, including professionals, students, and the public
  • Coordinate and support activities for annual and one-time eventsthat advance ASHGโ€™s mission
  • Collaborate on the development, implementation, and evaluation ofeducationalactivities
  • Research emerging topics ingenetics and genomicstoassistin new program development.
  • Coordinate updates to programmatic websites and educational platforms
  • Stay current on best practices in science education, public engagement, and inclusive outreach
  • Develop 1-pagers, FAQ sheets and other resources for members, policymakersand the public
  • Contribute to the development of professional guidances, annual meeting, and other educational programs

Collaboration & Communication

  • Collaborate with internal staff and external partners on existing projects and new initiatives
  • Provide regular progress updates to staff and stakeholders andmaintainproactive, ongoing communication
  • Represent the organization at local and national meetings, conferences, and events
  • Development of abstract and meeting summaries for the media and public
  • Deliver presentations and posters;disseminateproject outcomes and gather information relevant to program goals
  • Engage with policymakers and congressional staff to coordinate poster tours on research advances during the annual meeting

Other

  • Perform other duties as assigned in support of fellowship and organizational goals

Qualifications

Education and Training

  • An advanced degree (e.g., Masterโ€™s, PhD, MD, or JD)in genetics,genomicsor a related field
  • Demonstrated expertise and strong interest in genetics and genomics

Required Skills and Experience

  • Demonstrated interest in science policy, advocacy, education, and/or public engagement
  • Excellent written and oral communication skills
  • Ability to quicklyidentify, synthesize, and analyze scientific information
  • Strong attention to detail and organizational skills
  • Experience working effectively both independently and as part of a team
  • Professionalism, strong work ethic, and reliability
  • Working knowledge of Microsoft Outlook, Word, Excel, and PowerPoint

Preferred or Complementary Experience

  • Experience (volunteer or paid) in science education, policy,public engagement and/or advocacy initiatives
  • Passion for engaging broad audiences around human genetics and genomics
  • Commitment to building an inclusive, collaborative genetics and genomics enterprise
  • Experience leading training workshops and/or committee organization skills
  • Interest in developing project management skills through collaboration and co-creation

Working Conditions

  • ASHGโ€™s officeislocated inRockville, MD near the North Bethesda Metro in office space with free parking, onsite fitness facility, and dining options. We offer a work environment with a great mission, collegial team, and professional trust and respect.
  • ASHG has adopted a flexible work environment that enables the employee to work with their supervisor regarding remote work and in-person activity. To achieve the needed functions of some positions, ASHG reserves the right to require in-person weekly office hours in ASHGโ€™s Rockville office. This position is a Rockville, MD-based position and requires in-person availability1-2 times a week and willingness during key time periods or at the supervisorโ€™s request.
  • 37.5 hours/week, full-time.
  • Occasional evening or weekend meetings or events, and travel 1-2x/year, including totheAnnual Meeting.

Physical Requirements

  • This position requires sitting (90%), standing (5%), and walking (5%).
  • It requires computer work involving extensive use of keyboard, mouse, and monitor; and
  • Occasionally requires lifting materials of ~20 lbs.