Skip to Main Content

Managing Director, Advocacy (New England)

The ALS Association
Boston, MA
  • Expired: November 29, 2022. Applications are no longer accepted.
May be located anywhere in the New England area.

SUMMARY: The Managing Director, Advocacy leads advocacy efforts to fight ALS by planning and directing all aspects of state lobbying campaigns within a territory and supporting federal advocacy efforts. Reporting to the Territory Executive, the Managing Director, Advocacy works in a matrix relationship with Home Office Advocacy Subject Matter Experts (SME). Approximately 75% of this job is state advocacy and 25% is federal advocacy within the territory.

Overall responsibilities include all aspects of planning, leading, and executing successful advocacy campaigns at the state and federal levels. Recruiting, training, and mobilizing volunteer leaders to successfully drive advocacy campaigns.

DUTIES AND RESPONSIBILITIES: Core duties and responsibilities include the following. Other duties may be assigned.

State Advocacy Plan and direct implementation of state advocacy activities within a designated territory in collaboration with the Home Office State Advocacy Team.
  • Identify opportunities, develop multifaceted advocacy campaigns, and mobilize volunteers to secure state-level funds and pass key legislation based on state needs.
  • Develop, recruit, and support a volunteer network to engage in state advocacy to advance state-specific policy goals.
  • Design and support grassroots lobbying by volunteers using all forms of communication and tools.
  • Plan and manage state lobby days and in-district meetings, including virtual, to drive engagement and policy wins.
  • Maintain direct local relationships, as appropriate, with elected officials and their staff persons by participating in meetings, submitting letters, and presenting testimony, as appropriate.
  • Plan, prepare and utilize advocacy materials, including background papers, letters, testimony, and calls-to-action
  • Develop and implement strategies to proactively educate key state legislators
  • Regularly monitor state legislative and regulatory websites to track legislation
  • Establish and maintain collaborations and partnerships with other organizations, as appropriate.
  • Continually evaluate state advocacy engagement and take action to improve results.
  • Supervise and manage activities of retained lobbyists and other consultants.
  • Develop and maintain working relationships between the Association and all key state officials within their territory.

Federal Advocacy
  • Plan and direct implementation of federal advocacy activities and engagement within a designated territory in collaboration with the Home Office Congressional Advocacy Team.
  • Utilize and build volunteer advocacy network to achieve results on the Association's federal public policy priorities within an already federal well-established program.
  • Facilitate federal grassroots lobbying by volunteers, including the building and maintaining of relationships with elected officials and their staff.
  • Evaluate current federal advocacy engagement and provide recommendations to build advocacy capacity within a designated territory.
  • Participates in the planning of federal advocacy campaigns directed by Home Office Advocacy SME. Helps execute those campaigns within their designated territory.
  • Develops and maintains working relationships between the Association and all key federal officials within their territory.

  • Plans and implements strategies in close collaboration with Home Office Advocacy SMEs.
  • Responds to Home Office Research, Communications, and other relevant Subject Matter Experts
  • Convey a positive image that reflects favorably on The ALS Association.

SUPERVISORY RESPONSIBILITIES: (May supervise Advocacy support staff)
  • Carries out supervisory responsibilities in accordance with the organization's policies and applicable laws.
  • Responsibilities include interviewing, hiring, and training employees; planning, assigning and directing work; appraising performance; rewarding and disciplining employees; addressing complaints and resolving problems

  • Bachelor's degree with seven years of progressive work experience in health care advocacy or the equivalent combination of education and work experience.
  • Senior leader with a proven track record of public policy wins and in making positive change happen.
  • Experience in lobbying state legislators and officials as well as experience in federal advocacy.
  • Exceptional ability to analyze complex healthcare policy issues and develop relationships with policymakers.
  • Demonstrated ability to work and cultivate relationships across a variety of sectors, communities, and levels to ensure mission alignment and reach.
  • Proven success in recruiting and retaining high-level volunteer leaders and board members
  • Strong oral, written, and social media communication skills are required.
  • Strong leadership/management skills with the ability to motivate staff and volunteers and lead change
  • Demonstrated proactive approaches to problem-solving with strong decision-making capability
  • Computer skills required: (Accounting Software; Contract Management Systems; Development Software; Human Resource Systems; Microsoft Office; Payroll Systems; Project Management Software; Video Conferencing Software such as Zoom and Teams.)
  • Ability to travel on Association business as required.


The ALS Association's pay range for this position is $105,000 - $125,000 annually.

The ALS Association has compensation ranges for various work locations throughout the United States, allowing us to compensate employees competitively and consistently in diverse geographic markets. The above-listed listed range shows prospective compensation for this role; the appropriate range will be established by what is eventually determined to be the candidate's primary work location. Various factors, including the complexity and significance of the role, job duties/requirements, relevant experience and abilities, and primary work location, determine individual compensation. Compensation ranges are evaluated and typically adjusted on a regular basis. Offers are made within the compensation range that is in effect at the time of the job offer.

The Association may, at its discretion, offer merit-based increases tied to individual performance. The benefits listed may differ depending on employment status with the Association. Healthcare benefits, a 401(k) plan with employer match, short-term and long-term disability coverage, basic life insurance, well-being benefits, paid time off and several paid holidays are available to Association employees, among other benefits.

We are an equal opportunity employer, and all qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity or expression, pregnancy, age, national origin, disability status, genetic information, protected veteran status, or any other characteristic protected by law.

The ALS Association endeavors to make accessible to any and all users. If you would like to contact us regarding the accessibility of our website or need assistance completing the application process, please email This contact information is for accommodation requests only and cannot be used to inquire about the status of applications.

Where permitted, employment is contingent upon proof of completion of the COVID-19 vaccination series (and booster(s), if eligible) by the employment start date, subject to potential exemptions to be considered on a case-by-case basis.

The ALS Association


Boston, MA
02108 USA



View all jobs at The ALS Association